The aim of our programmes is to help you feel confident to interact and share your experiences in a safe environment and with people who understand. We want you to come away from our programmes feeling connected, empowered and supported to manage your condition and regain a sense of control over your life.
Our Live your Life workshops are one day long, and run either in-person or online via zoom. They are designed to be relaxed and informal. They are facilitated by trained volunteers with lived experience of lymphoma and supported by clinical nurse specialists. The workshops allow you to connect with others in a similar situation and we encourage discussion and interaction throughout the day.
Visit our workshops page to find out more information.
As an alternative to our Live your Life workshops we offer an on-demand programme, known as the Live your Life mini course. The Live your Life mini course is a self-paced online course to help you take control of living with and beyond lymphoma. It consists of videos that cover the five modules of our Live your Life workshops, supported by the Live your Life workbook.
In order to access the mini course we ask you to register and complete a short survey. A few weeks following your registration we will ask you to complete a feedback survey about your experience of the course.
Visit our mini course page to register to access the course videos online.
You may be wondering if our Live your Life workshops are for you. They are designed for people who have just finished treatment or who are on active monitoring (watch and wait). They focus on learning how to cope with physical, practical and emotional wellbeing after finishing treatment or being put on active monitoring, and helps to support you in learning how to get back to the new normal and life beyond lymphoma.
I have just been diagnosed, is this workshop right for me?
We would suggest this workshop may be too soon in your journey, some discussion points could heighten your emotions and you may not find it helpful with coping with your diagnosis. The workshop focuses on moving forward beyond your diagnosis and treatment, this may not match where you are. We understand you may need someone to talk to during this time and we would recommend calling our helpline, they’re here to listen and support you. You can find out more about the helpline here and about our other support services here.
I have just started or about to start treatment, is this workshop right for me?
We would suggest this workshop may be too soon in your journey, some discussion points could heighten your emotions and you may not find it helpful with coping with your diagnosis. The workshop isn’t a forum to talk in detail about what treatment was like and the effects. If this is something you’re looking for you can see what other support services we offer here.
I am on active monitoring, is this workshop right for me?
Yes, if you are on active monitoring this workshop would be ideal for you. It offers you the opportunity to meet others in a similar situation and to learn how to cope with different emotions. It can offer you strategies for adjusting to life with an ongoing condition.
I am just completing treatment, is this workshop right for me?
Yes, if you have completed treatment this workshop would be ideal for you. You can talk to a nurse, facilitators with lived experiences and other people in your situation. It offers you the opportunity to ask any questions you may have, share your experiences and to learn about local support.
I completed treatment a couple of years ago, is this workshop right for me?
If you’ve developed your own coping strategies you may not need the workshop. If you’re finding it challenging to adjust and would like some support or to meet others in a similar situation the workshop would be ideal for you. We also have other services you may find helpful in your recovery which you can find here.
I'm on maintenance treatment (such as rituximab), is this workshop right for me?
Yes, if you are on maintenance treatment this workshop would be ideal for you. It offers you the opportunity to meet others in a similar situation and to learn how to cope with different emotions. It can offer you strategies for adjusting to life with an ongoing condition. You can find more information about maintenance treatment here.
My lymphoma has not responded to treatment, is this workshop right for me?
This workshop is designed for people whose lymphoma has responded well to treatment, rather than for people whose lymphoma has not responded to treatment. You may find the on-line Advanced and Refractory support meeting more useful. This online support meeting is open to people who have been told that treatment is no longer working for them, have decided against further treatment or are making that decision. You can access the online support meetings here.
I live outside the UK, can I attend a workshop?
The Live your Life workshops are only available to people within the UK. This is because we are a UK charity, our services are for people in the UK, and the content of the course is UK-specific (for example, information about the NHS and local services). However, we hope you can find some useful information on our website to help you.
How many people attend a Live your Life workshop?
The workshop groups are small, up to 20 people, to encourage discussion and interaction throughout the workshop. We feel people get the most out of the workshop when they contribute in the group discussions, however we understand some people may not be comfortable to contribute to begin with so we have a chat function where you can ask questions and add to the workshop. In our experience once the workshop starts attendees start to feel more comfortable and join in more as the day goes on.
Can someone join with me on the workshop?
You are welcome to invite someone to join you - whether that's a friend, family member or carer.
Can I attend the workshop if I want to support someone with lymphoma, even if the person with lymphoma is not on the workshop?
We welcome a family member or friend to attend a workshop with the individual with lymphoma, and this can be a helpful way for them to support the individual. However, if the individual is not able to attend, we would ask that the family member or friend does not attend alone. However, we do have a number of ways that we can support family members, friends and carers themselves. We run on-line support meetings which includes a support meeting for partners, family members and close friends of someone with a diagnosis of lymphoma. You can find out about all our on-line support meetings here. We would also encourage you to contact our helpline services here and our Closed Facebook Support Group here.
You don’t have a workshop in my area, what can I do?
If we don’t have a workshop in your area you sign up to our Live your Life mini course here.
I have completed the mini course; can I attend a virtual workshop?
Yes of course you can. Although the content will cover the same issues, we find that as the virtual workshops are interactive you can gain more from the programme and it gives you the opportunity to ask any questions you may have.
Can I still access support after I’ve attended a workshop?
Of course, you can see which other services we have to offer here.
If you’re not sure if the workshop is right for you, please email us on firstname.lastname@example.org or you can call our helpline service to talk through what services may be suitable for you.