News

Children across the country are invited to leap into action in support of our work.

For people with lymphoma during the COVID-19 pandemic.

Guidance for people affected by lymphoma.

Latest update: 25 March 2020

This guidance has been produced by the One Cancer Voice* charities in partnership with NHS England on 25 March 2020. 

This guidance relates to cancer in general. Please see our page on COVID-19 and lymphoma for information specifically for people affected by lymphoma.

Specific information on shielding and protecting people considered extremely vulnerable from COVID-19. Those with lymphoma have been identified as one of the extremely vulnerable groups.   

Lymphoma is a 'haematological cancer' or blood cancer - a cancer that develops from blood cells.

Updated guidance has been produced by the One Cancer Voice* charities in partnership with NHS England on 18 March 2020.

This guidance relates to cancer in general. Please see our page on COVID-19 and lymphoma for information specifically for people affected by lymphoma.

The current situation is understandably causing many people to feel stressed and anxious. This information on the Mind website may be helpful.

Dorothy Reed - giving Hodgkin lymphoma a clear diagnostic marker.

New European guidelines give evidence-based recommendations for the diagnosis, treatment and follow-up of people with marginal zone lymphoma.

Dwayne shares his story of mycosis fungoides, a rare type of lymphoma that develops in the skin, and how it impacted him.

NICE approves new, chemotherapy-free treatment option - lenalidomide in combination with rituximab.

Our revised Young person’s guide to lymphoma is now available.

There are no specific guidelines for during or after lymphoma treatment - it is recommended you follow the government guidelines.

Results of the LEGEND trial of a lenalidomide-based regimen in DLBCL have been published in the Annals of Haematology.

Student Volunteering Week celebrates student volunteering that improves wellbeing, employability and connectivity.

The European Medicines Agency has extended the licensed indications for two lymphoma treatments: rituximab and venetoclax.

The FLYER study found that four cycles of R-CHOP was no less effective than six cycles in people with stage 1 or 2 high-grade B-cell lymphoma and no risk factors.

On Time to Talk Day, our Information and Support Officers encourage anyone affected by lymphoma to contact our Helpline Services if they need someone to talk to.

Today marks the 20th anniversary of World Cancer Day – a global movement to raise awareness and understanding of cancer and to ensure that cancer treatment and care is equal for all.

Sara Kalic presents an evening of classical song in Thame on Saturday 8 February.

Phase 2 trial finds that acalabrutinib is active and well tolerated in people with Waldenström’s macroglobulinaemia

Promising results published in the Journal of Clinical Oncology in November. 

We want to hear from you! Please share your experiences in this new survey.

Brentuximab vedotin (Adcetris®) is now available on the NHS in Scotland for adults with some advanced T-cell skin lymphomas.

Our expert looks at ways to help with fatigue and explains the importance of resting mind as well as body.

Promising early results of the KEYNOTE-51 study published in the Lancet Oncology

Read on for just some highlights of what we have achieved together in 2019.

Thank you to everyone who has shown their support for us in the lead up to Christmas.

US company gets the go-ahead to start a trial of 'off-the-shelf' CAR T-cell therapy for people with lymphoma.

A recent study published by Macmillan Cancer Support has found that most people who have chronic cancer are not getting the support they need.

The European Medicines Agency has recommended new treatment options for people with relapsed or refractory follicular lymphoma or diffuse large B-cell lymphoma.

Today is International Volunteer Day so it's the perfect time to thank our wonderful volunteers for their support and share their achievements this year.

International Day of People with Disabilities 2019 is an opportunity to remind people our information is designed for all.

Over 3,000 people have entered the HORIZONS study into the impact of cancer diagnosis and treatment on everyday life, including 719 people with lymphoma.

A new ‘gene signature’ might help predict who will respond well to traditional chemotherapy and who might need alternative treatment.

This Self Care Week we want to talk about how self-management and remote monitoring can improve your quality of life.

A protein called sIL-2R might help predict outcomes in people with classical Hodgkin lymphoma.

We are delighted for Marguerite Russell and David Cooke on their well-deserved win at the Institute of Fundraising East Anglia Regional Awards.

Today - in collaboration with 28 charities - we’ve launched a manifesto for people living with cancer. We’re calling on the next Government to improve prevention, diagnosis, treatment and care.

Women diagnosed with Hodgkin lymphoma during pregnancy can be successfully treated during pregnancy with no harm to the unborn child.

We are delighted with the success of our first ever Muddy Mutts sponsored dog walk - a big thank you to everyone who took part.

On National Stress Awareness Day we're sharing a summary of a recent article in Lymphoma Matters which explains how your feelings after treatment are related to our natural fight or flight reaction.

On International Volunteer Managers Day, our Volunteering Development Manager, Carly, gives an insight into her role at Lymphoma Action. 

We're proud to share that we are featured on the BBC Radio 4 Appeal this week.

Our Volunteering Development Manager, Carly, shares why she is part of a team who organise an annual volunteer managers conference.

Raising awareness of breast implant associated anaplastic large cell lymphoma, a rare lymphoma that starts around breast implants

We are delighted to welcome Professor John Radford as our new President.

Focus on... T-cell lymphomas

Sharon, Senior Information and Support Officer in our Information and Support Team, reflects on her attendance at the CLL Horizons 2019 conference in Edinburgh in September. 

You need to be vaccinated every year as vaccine available is based on the virus strains experts think are most likely to be around.

Axicabtagene ciloleucel (Yescarta®) is now available on the NHS in Scotland.

Share your experiences in a focus group in Manchester or London.

NICE not recommending idelalisib for use on the NHS for people with refractory follicular lymphoma.

Aylesbury Gardening Society support us with an inspiring competition.

Collaborating to make blood cancer data visible.

Our clinical trials information service turns 3 this week - and what a busy 3 years it has been!

Lymphoma Action - Most Dedicated Cancer Charity 2019 - UK

Blood tests play only a small role in the diagnosis of lymphoma.

World Lymphoma Awareness Day takes place on 15 September every year to raise awareness of lymphoma - the most common blood cancer. 

This year the campaign is encouraging people around the globe to share key facts about lymphoma - not only so more people are aware of the disease, but because research shows that people affected feel more confident when they are more informed.

On this National Awareness Day we are reminding people of the signs of this serious condition. 

At present there is not enough evidence to confirm a link between chicken and non-Hodgkin lymphoma or to recommend that people stop eating chicken.

Our team attended the British Medical Association’s Patient Information Awards 2019 and we were delighted to be recognised for three projects.

Good news that tisagenlecleucel (Kymriah®) is now available on the NHS in Scotland

Phase 3 study reports better outcomes.

With the lovely warm weather we're having, here are some tips on staying safe in the sun. 

Attendees of the Teeside and Leeds Support Groups have great get-together 

Anaplastic large cell lymphoma (ALCL) can be associated with breast implants, but it is extremely rare. If you have any issues with a breast implant, you should seek advice from a health professional.

Lymphoma Action is continually pushing for improvements in the access to, and delivery of, CAR T-cell therapy to allow everybody who is suitable for treatment to access it.

As the most common cancer in people aged 15 to 24, we're looking at signs and symptoms and busting some myths about lymphoma.

Having lymphoma means that you need to plan ahead to get the right insurance.

Our Live your Life Events Co-ordinator, Nika, gives an insight into her role at Lymphoma Action.

Three NEW and eight REVISED medical information pages just published.

How can I find out about a trial that may be suitable for me?

Results of a phase 3 trial for people with CLL with other medical conditions

Research studies show that relapse is rarely picked up in this way

AstraZeneca announced interim results from their phase 3 ASCEND trial at the European Hematology Association Congress #EHA24 last month

The Lancet Oncology has recently published results of a phase 1 trial of a potential new treatment for T-cell skin lymphoma

Here we summarise some of the latest lymphoma research presented at the American Society of Clinical Oncology's annual meeting in Chicago in June.

Sepsis has been in the news - here's what you need to know about neutropenic sepsis.

We're supporting Health Information Week as we believe high quality health information empowers people affected by lymphoma.

How one of our volunteers shared his story with his hospital radio and local newspaper to help raise awareness of lymphoma and the support we provide. 

It is true that CAR T-cells are a new type of treatment that could transform the prognosis for some people with difficult-to-treat lymphoma. However, it can have serious side effects and research is still ongoing to find out the long-term effects of the treatment.

Celebrating the end of a successful partnership with a big cheque - and an even bigger thank you! 

Easy Reads are designed for people with a learning disability, but useful for everyone.

Carers Week raises awareness of the contributions carers make and the support they need - we want to make sure that everyone who is supporting a loved one with lymphoma knows they are not alone. 

Phase 2 study finds that a new treatment combination may improve outcomes for people with relapsed or refractory Hodgkin lymphoma.

If you’ve missed what we've been up to this Volunteers' Week 2019, here’s a recap for you…

Volunteers' Week is a national campaign celebrating the wonderful contribution of volunteers across the UK. We'd like to say a huge thank you to our incredible volunteers - we simply couldn’t inform, support and connect with as many people affected by lymphoma without your time, energy and commitment.

Event in London for people affected by Waldenström’s Macroglobulinemia.

A group of amazing supporters whizzed through the air at over 100mph above breathtaking views at Penrhyn Quarry on Saturday 18 May 2019

Raising awareness of blood cancers and blood stem cell donation

Athena McCallum selected by BBC to feature in careers section.

Recognising the importance of clinical trials and thanking all those involved

Stephen Scowcroft is the new chair of the Alliance of twelve charities representing people living with blood cancer.

How strong is the evidence that Roundup® contributes to the development of non-Hodgkin lymphoma?

To mark International Nurses' Day 2019 on 12 May, we would like to thank all the nurses caring for people with lymphoma.

Sun safety is important throughout the year, even if the sun isn’t shining - you can still get burnt through clouds.

Two recent studies have looked at whether the particular molecular subtype of DLBCL can be used to tailor a person's treatment.

A recent clinical trial found that giving two additional doses of rituximab to people with aggressive B-cell lymphoma who responded to six cycles of R-CHOP did not improve outcomes.

A huge thank you to the runners who took part in the 2019 London Marathon to help make sure that no one faces lymphoma alone.

We have 34 amazing people running the London Marathon 2019 for us this Sunday to support everyone affected by lymphoma.

We're very grateful to Howdens and MB DESIGN & FIT for their support.

Thank you for your continued support. 

Head of Business Development, Stephen Scowcroft, represented Lymphoma Action in Brussels.

Thank you to everyone who joined us in Aylesbury or held their own quiz night for us.

Adding polatuzumab vedotin to bendamustine and rituximab improves survival in patients with relapsed or refractory DLBCL.

Trainees keen to specialise in haematology and medical oncology are encouraged to book their place to join Toby in Oxford on 15-16 July

Hear from people affected by lymphoma why they are joining us on Saturday 11 May 2019 in London.

Study shows people want better preparation for transition from treatment to follow-up.

Volunteers from RD:IR give Lymphoma Action offices a face lift.

Duvelisib reports promising efficacy in people with low-grade non-Hodgkin lymphomas who have not responded to previous treatment.

Teenage and Young Adult Cancer Study published.

NICE approves brentuximab vedotin for advanced primary cutaneous anaplastic large cell lymphoma, mycosis fungoides and Sézary syndrome.

Take care of your oral health to protect your mouth and body.

The British Society of Haematology has released new guidelines on the diagnosis and treatment of PMBCL.

Share your views on access to the latest cancer drugs.

Lymphoma Action's Stephen Scowcroft comments on rare lymphoma that developed after heart transplant.

Tisagenlecleucel (Kymriah®) not available for use on the NHS in Scotland

Tom has lymphoma storybook recently published.

Second person in remission from HIV after a donor stem cell transplant for blood cancer. 

UK study researching impact of cancer on daily life across the UK.

Lymphoma Action are pleased to support Rare Disease Day.

Football club QPR welcomed Emily - currently in treatment for lymphoma - and her brother and father to their training ground.

Read Mary's experience of chemo brain in the forthcoming Lymphoma Matters magazine

British Association of Dermatologists publishes new guidelines for the management of primary cutaneous lymphomas

The Scottish Medicines Consortium is not recommending axicabtagene ciloleucel (Yescarta®) for use within NHS Scotland

The campaign encourages conversations about mental heath, urging people to talk to others in whatever way they want to.

I Am and I Will - you are the hero of this campaign. Start a conversation about cancer today with your family, friends, colleagues and networks.

New CAR T-cell therapies will be available for selected people with relapsed or refractory large B‑cell lymphoma

New edition of Tom has lymphoma now available

Results of the Echelon-2 study show that adding brentuximab vedotin to chemotherapy improves survival in people who have CD30-positive T-cell lymphomas

The National Cohort Study researching late effects of Hodgkin lymphoma treatment will be the largest study of its kind in the world

Venetoclax plus rituximab is now available on the NHS for adults with relapsed or refractory CLL

Mogamulizumab licensed for the treatment of mycosis fungoides or Sézary syndrome (SS)

Have your say on brentuximab vedotin for cutaneous T-cell lymphoma

The Lymphoma Coalition Europe (LCE) is looking for people to be members of a new Lymphoma CAB - if you want to influence research and help create a louder voice for the lymphoma community register your interest today.

As part of our commitment to delivering the best possible services for people living with lymphoma, we're delighted that Lymphoma Action will be represented on a new leadership programme for women working in the charity sector.

The NHS Long Term Plan has been published and whilst lymphoma is not specifically mentioned, we're glad to see the more personalised, co-ordinated approach to cancer care. We hope the government supports the commitments with the resources and staffing needed.

Have your say on bendamustine with rituximab for relapsed low-grade non-Hodgkin lymphoma.

Merry Christmas and thank you!

Our comment following recent news stories.

A negative PET scan after two cycles of eBEACOPP allows treatment intensity to be reduced without affecting disease control

New guidelines give a clear treatment pathway for people with primary CNS lymphoma

Our new animation explains how cancer develops and how the drugs in chemotherapy work to destroy cancer cells

New trial shows a combination of ibrutinib and obinutuzumab is an alternative to ibrutinib plus chemo in first-line treatment of CLL/SLL

To mark #IVD2018 we're sharing the results of our first volunteer experience survey and saying thank you to our amazing volunteers!

Top 10 research priorities to help people live better with and beyond cancer.

Stephen Scowcroft, our Business Development Manager, reports back from the European Society of Medical Oncology (ESMO) Congress 2018 #ESMO18.

We're proud that our Live your Life programme has been awarded an AbbVie Big Ideas for Better Health Award 2018.

We're delighted that our animation explaining lymphoma to children has been shortlisted in the Charity Film Awards - we'd be grateful for your voters so we can progress to the next stage.

Around 10 people every day in the UK are diagnosed with CLL and SLL and face the challenges of living with this chronic cancer - our new resources are here to help.

NICE recommending Kymriah for young people with B-cell acute lymphoblastic leukaemia (ALL)

World Pneumonia Day aims to raise awareness of pneumonia and promote prevention and treatment.

Advances in radiology continue to improve diagnosis, staging and monitoring of lymphoma.

Our response to the recent consultation on the NHS long term plan.

Medicinal cannabis can now be prescribed for adults with chemotherapy-related nausea or vomiting, who haven't responded to licensed treatment.

People recently diagnosed with mycosis fungoides and Sézary syndrome may be able to join study

Whether you or another family member has lymphoma, it’s important to talk to children about what they can expect. Our new animations help explain what lymphoma is, in a child-friendly way.

Under the banner 'Right To Be Forgotten' Youth Cancer Europe call for EU-wide legislation to end financial discrimination for cancer survivors.

Initial clinical trial results shows this could be a potential treatment.

Launched on World Menopause Day, we have produced three new videos to support women experiencing an early or premature menopause after treatment for lymphoma. 

Paul Allen, co-founder of Microsoft, has sadly died from complications of non-Hodgkin lymphoma.

Ground-breaking treatment offers new hope.

Scientists whose work underpins a targeted treatment for lymphoma win Nobel Prize for Medicine.

The RATHL Trial and the need to establish the impact of different chemotherapies on fertility.

Our clinical trials in lymphoma films highly commended in the BMA Patient Information Awards 2018 

Education and Training Manager Helen Mee reflects on the first of a series of conferences for people with lymphoma

Newer antibody still not recommended in Scotland

Your insight could support a NICE assessment for brentuximab vedotin

We're supporting the MBCV campaign alongside eight blood cancer patient groups.

Our response to the NICE draft decision to reject CAR T-cell technology on the NHS.

Both my husband and his father have had a blood cancer diagnosis so I am concerned whether there is a genetic link. 

Dr Becky Salisbury, our Senior Medical Writer, blogs about one of the hot topics from the recent British Society of Haematology meeting. 

Did you know Lymphoma Action has support groups across the UK? 

Many are organised by our wonderful volunteers and we are looking for more people to help. 

Positive update about ibrutinib and relapsed chronic lymphocytic leukaemia (CLL)

This report from the annual meeting of the British Society of Haematology discusses reducing treatment for Hodgkin lymphoma to reduce side effects. 

After a donor stem cell transplant, Trevor set his sights on the British Transplant Games

Stephen Scowcroft, our Business Development Manager summarises the Lymphoma Coalition Global Summit 2018 held in Prague in July 2018

If you have used Lymphoma TrialsLink, your feedback could help us improve this information service

NICE/NHS England recommend pembrolizumab for people with relapsed or refractory Hodgkin lymphoma who have had brentuximab vedotin and cannot have an autologous stem cell transplant

If you would like to share your views on how cancer care could be improved, Cancer52 would like to hear from you.  

Patients are not involved in MDT meetings as various other cases are discussed, so there is a problem of confidentiality. But talk to your CNS to see whether they could represent your views. 

Our Education and Training Manager, Helen Mee, talks about our upcoming event in Glasgow and explains why you should join us

The British Society of Haematology have published their guidelines on the treatment of chronic lymphocytic leukaemia

Should obinutuzumab be used as part of the first-line treatment of follicular lymphoma or should we stick with rituximab?

It can be difficult knowing you have an illness but are not having treatment - our new information can help.

New guidelines give a clear treatment pathway for people with mantle cell lymphoma

Our Senior Medical Writer, Dr Becky Salisbury, talks about some of the hot topics raised at the recent British Society of Haematology meeting. 

As we celebrate 70 years of the NHS, we say thank you to all the staff who care for people affected by lymphoma. 

Health Information Week is an annual campaign to promote the quality health resources available.

These therapies offer a new treatment option for people with difficult-to-treat B cell lymphomas. 

We look forward to Ropinder joining the organisation in August. 

How good are blood tests at detecting whether lymphoma is progressing or relapsing? We share the answer from issue 103 of Lymphoma Matters magazine. 

Stephen Scowcroft reports back from a biosimilars panel at the European Haematology Association (EHA) Congress 2018. 

Promising results for new antibody treatment for B-cell lymphomas in ongoing Hu5F9-G4 clinical trial

Karen, our regional development manager, and her team of daredevils took on the Velocity Zip Slide in Snowdonia to raise funds for us. 

This Learning Disability Week, we are seeking feedback to help us develop a new version.

New evidence means the targeted drug can now be used routinely on the NHS for more people with classical Hodgkin lymphoma.

Becky, our senior medical writer, shares some of the discussion from the British Society of Haematology annual meeting.

To mark Carers Week 2018 we highlight the support we offer to those caring for someone with lymphoma.

Held at Keble College on 25-26 June, this course is for specialist trainees or consultants. A nurse stream will be held on Sunday 24 June.

To mark Volunteers’ Week (1-7 June), Carly, our new Volunteering Development Manager, tells us more about volunteering with Lymphoma Action.

Lymphoma Canada is seeking the views of peripheral T-cell lymphoma patients who have experience of pralatrexate or belinostat.

Rowan Dartington employee helps secure a grant in her grandmother’s name.

Fancy yourself a bit of a daredevil? Join Team Lymphoma for our Skydive Weekend.

Rachel updates on a successful 16 months of helping people to live with and beyond lymphoma.

Share your experiences in new study from Opinion Health, a UK healthcare research firm. 

To mark International Nurses’ Day on 12 May we say thank you to all the nurses caring for people with lymphoma.

Two of our #TeamLymphoma runners share their experience of running the 2018 London Marathon. 

Lymphoma Canada is seeking the views of DLBCL patients who have had CAR-T Cell therapy. 

Advice on how to regain stamina during recovery and after treatment for lymphoma. 

Learn more about your condition at this year's National Conference. 

A huge thank you to the 37 runners who took part in the 2018 London Marathon to support Lymphoma Action. 

Jane, a Lymphoma Nurse Clinician, outlines the benefits of attending our National Conference in Manchester on 12 May. 

On 18 April 2018 we launched a new name, fresher look, and new website. 

Becky, our senior medical writer, looks at new approaches for high-grade non-Hodgkin lymphoma, discussed at the ASH meeting in December. 

Becky, our senior medical writer, looks at some of the questions raised about maintenance for follicular lymphoma at the post-ASH meeting. 

Becky, our senior medical writer, provides the latest instalment from the 2017 meeting of the American Society of Hematology. 

Becky, our senior medical writer, provides the latest update from the 2017 meeting of the American Society of Hematology. 

NICE recommends obinutuzimab (Gazyvaro) to be considered as part of first-line treatment for advanced follicular lymphoma. 

Initial results from the phase 1/2 LYMRIT-37-01 clinical trial testing betalutin.

Becky, our senior medical writer, provides part one of an update from the 2017 meeting of the American Society of Hematology. 

Initial results from the phase 2 SADAL trial, which has re-opened.

Results from the phase 2 CLARITY clinical trial have informed new treatment groups in the ongoing FLAIR trial.

Ex-pro footballer and Lymphoma Action supporter Tony Lormor shares his top tips for preparing for a challenge event. 

Encouraging results from the first part of the ongoing OASIS clinical trial.

Read our response to The Hidden Cancer: The need to improve blood cancer care. 

Scottish Medicines Consortium chooses not to recommend obinutuzumab for treatment of follicular lymphoma. 

NICE reverses its decision on ibrutinib for relapsed or refractory mantle cell lymphoma. 

As someone who knows what it’s like to live with a lymphoma diagnosis, I am delighted that we have received funding from BUPA UK Foundation to run a programme of Live your Life workshops for young people aged 18-30.

We are delighted to be able to launch our Young People’s Live your Life programme, which will go live with our first workshop in Cambridge on 3 February.

Early results from the phase 1/2 trial of G100 are encouraging.

NICE reverses decision on Ibrutinib and recommends it for baseline commissioning in England. 

'Exceptional' grant to help boost our regional networks and help us reach more people across the UK. 

Kat, a Macmillan Haematology Nurse Specialist, shares how attending our Lymphoma Masterclass helped her focus for the year ahead. 

Brentuximab vedotin recommended as treatment option for systemic anaplastic large cell lymphoma. 

Some people with CLL now able to access venetoclax through Cancer Drugs Fund. 

People with certain mutations (genetic changes) in their lymphoma cells are most likely to benefit.

MOR2018 and lenalidomide could be a new treatment combination for diffuse large B-cell lymphoma (DLBCL) that has relapsed (come back) or was refractory (didn’t respond well) to previous treatment.

New approaches are needed for the treatment of people with T-cell lymphoma after disappointing results in the CHEMO-T trial.

Adding rituximab to chemotherapy improves outcomes for under-18s with advanced-stage B-cell non-Hodgkin lymphoma (NHL)

Recently published findings from the phase 3 RATHL trial (Response-adapted therapy for advanced Hodgkin lymphoma) show that most people can be spared some side effects.