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Useful organisations

This is a list of organisations you may find helpful.

On this page

Lymphoma and other blood cancers

Skin (cutaneous) lymphomas

Cancer – all types

Cancer in children and young people

Coping with the effects of cancer

Blood, bone marrow and stem cell services

Support for older people

Support for people with HIV

Support for carers

Financial support

General health


Emotional wellbeing, including talking therapies

Complementary therapy

Fertility and pregnancy


Exercise and physical activity

End of life, bereavement and grief, including talking to children about grief

For further information and support, contact our Helpline (freephone) on 0808 808 5555 (Monday to Friday, 10am to 3pm), email us at or via Live Chat. We might be able to put you in touch with someone else affected by a similar lymphoma through our Buddy Service

Lymphoma and other blood cancers

Blood Cancer UK funds research into all types of blood cancer and supports anyone worried about blood cancer with expert information and advice.

CLL Support provides information and support for those affected by chronic lymphocytic leukaemia (CLL). They also represent CLL patients in discussions with the government, pharmaceutical companies and other charities.

Cure Leukaemia helps to fund clinical trials across the UK to connect patient with treatment not currently available through standard care.

The InterLymph Consortium is an open scientific forum for epidemiologic research in non-Hodgkin lymphoma.

Leukaemia Care provide information and support to anyone affected by leukaemia and related blood cancer types.

Leukaemia & Lymphoma NI funds research into the causes and cures of blood cancer in Northern Ireland.

The Lymphoma Coalition is a worldwide network of lymphoma patient groups. Lymphoma Action is a member of the Lymphoma Coalition.

The Lymphoma Research Trust funds research into the treatment of lymphoma and makes grants to medical researchers who organise clinical trials.

WMUK provides information and support about Waldenström’s macroglobulinaemia (WM) and works closely with the WM community to drive research into WM.

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Skin (cutaneous) lymphomas

The British Association of Dermatologists (BAD) provides a range of patient information leaflets, including one on mycosis fungoides and several on treatments for skin lymphomas.

CTCL Answers is an online platform that offers information and support to people affected by cutaneous T-cell skin lymphoma. Their website was developed and funded by pharmaceutical company Kyowa Kirin, with input from clinicians and charities, and has resources including videos and podcasts.

The Cutaneous Lymphoma Foundation is a US-based international organisation that provides support and information for anyone affected by cutaneous lymphoma.

DermNet NZ is the website of the New Zealand Dermatological Society, and produces detailed, illustrated information about skin conditions including skin lymphomas. It is endorsed by the British Association of Dermatologists.

Skinship (UK) is a confidential dermatology helpline that supports anyone affected by a skin condition and lobbies for improved dermatology training in the UK.

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Cancer – all types

Cancer Focus Northern Ireland supports people affected by cancer and their families in Northern Ireland.

Cancer Research UK funds research into many types of cancer. Their website has information on all types of cancers, including causes, prevention, treatment and coping strategies.

The International Agency for Research on Cancer (IARC) is the specialised cancer agency of the World Health Organization. It promotes international collaboration in cancer research.

Macmillan Cancer Support provides support services for people with all types of cancer from diagnosis through treatment and beyond. They also run public campaigns and influence decisions made on cancer-related policies in the UK.

Maggie’s provides free practical, emotional, financial and social support to people with cancer and their family and friends.

Marie Curie is a leading charity specialising in end of life. They provide nursing and hospice care, as well as information and support on all aspects of bereavement. Specifically, they have a directory of bereavement support.

Penny Brohn UK provides free care and support to anyone affected by cancer before, during and after treatment.

Shine Cancer Support is for adults in their 20s, 30s and 40s who have a cancer diagnosis. They offer a variety of support, including online forums, support events and information.

Tenovus Cancer Care is a Welsh cancer charity who provides treatment, support and practical advice to cancer patients and their families in the community.

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Cancer in children and young people

Carers UK produce a guide about when a child moves from child to adult care services.

The Children’s Cancer and Leukaemia Group (CCLG) runs conferences for healthcare professionals, funds and supports research into childhood and teenage cancers,  and provide information for those affected by childhood and teenage cancers.

The Childhood Cancer Parents Alliance (CCPA) provides support, encouragement and advice to families whose children have a cancer diagnosis during and after treatment.

Make-A-Wish Foundation UK grants wishes to children and young people (aged 3 to 17) with critical illnesses.

Rays of Sunshine Children’s Charity grants wishes to children and young people (aged 3 to 18) with serious or life-limiting illnesses.

Starlight aims to brighten the lives of seriously ill children (aged 4 to 18) by providing in-hospital entertainment for children to take their minds off their illness.

Teenage and Young Adults with Cancer (TYAC) is a network of healthcare professionals who treat and care for teenagers and young adults with cancer.

The Oncology Guide is a resource for families. It has videos and animations that are designed to be child-friendly and help to explain different cancers, common procedures and treatments.

The Teenage Cancer Trust offers care and support designed for, and with, young people. They fund specialised professionals in the NHS so young people have dedicated staff to support them.

Young Lives vs Cancer provides specialist support for children and young people with cancer, and their families.

The Youth Cancer Trust provides support and free activity-based holidays for young people (aged 14 to 30) who have had or currently have cancer.

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Coping with the effects of cancer

The British Red Cross offers a range of practical support services, including help at home.

The Bladder and Bowel Community provides information, support services and guidance for anyone affected by bowel and bladder conditions. They also produce a toilet access card, called Just Can't Wait.

Cancer Hair Care offers free, expert advice and support on all aspects of hair loss and hair care before, during and after cancer treatments.

Changing Faces provides mental health, wellbeing and camouflage services for people with a facial disfigurement. They also publish self-help booklets and videos.

Let’s Face It provides support and information to people who have facial disfigurements, including advice on camouflage make-up.

Look Good Feel Better runs free workshops, both virtually and in person, for people going through a cancer diagnosis and treatment.

The Lymphoedema Support Network (LSN) provides information and support to people with lymphoedema due to any cause and those ‘at risk’ of developing the condition.

My new hair provides advice and supports a national network of independent salons and professionals who offer a wig styling service for people with cancer and medical hair loss.

Pain Concern provides information and support to people living with pain (including neuropathic pain).

Self management UK supports people with long-term health conditions by providing education courses for them and their carers.

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Blood, bone marrow and stem cell services

Anthony Nolan provides support and information for people with blood cancer and their families, including information on bone marrow and stem cell transplants.

DKMS is an international organisation whose mission is to increase the number of lifesaving blood stem cell donors.

NHS Blood and Transplant (NHSBT) provides a blood and transplant service to the NHS with links to blogs and information about blood donation, blood transfusion, peripheral blood stem cell collection and plasma exchange.

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Support for older people

Age UK provides information and advice for older people about benefits, housing and care, as well as health and wellbeing.

Independent Age provides free information, support and advice for older people and their families on care and support, money and benefits and health and mobility. They also provide friendship services to reduce isolation.

Silver Line is a confidential, free 24-hour helpline for older people offering information, friendship and advice. They link callers to local groups and services, offer regular friendship calls, and protect and support those who are suffering abuse and neglect.

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Support for people with HIV

Be in the Know provides online information about HIV and AIDS to help people make informed choices and live healthily.

HIV iBase provides up-to-date information about HIV treatment and a Q&A service.

NAM Aidsmap provides independent, accurate and accessible information about HIV and AIDS.

The National AIDS Trust (NAT) is a UK charity that champions the rights of people living with HIV and campaigns for change.

Positively UK provides peer-led support, advocacy and information to everyone living with HIV to manage any aspect of their diagnosis, care and life with HIV.

The Terrence Higgins Trust offers advice and support to help people with HIV manage their condition long term, with local centres across the UK. They also campaign on issues to make sure they get the funding they need.

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Support for carers

Carers UK provides free and confidential support for carers across the UK, as well as information covering a variety of topics and some animated information guides.

Carers Northern Ireland is the Northern Ireland office of Carers UK.

Carers Scotland is the Scottish office of Carers UK.

Carers Wales is the Welsh office of Carers UK.

Carers Trust work with a network of local carer organisations to provide funding, support and programmes to all unpaid carers.

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Financial support

British Red Cross provides practical, local and emotional support.

Citizens Advice England helps people resolve legal, money, housing, consumer and other problems by providing free, independent and confidential advice.

Citizens Advice Northern Ireland is the Northern Ireland office of Citizens Advice.

Citizens Advice Scotland is the Scottish office of Citizens Advice.

Citizens Advice Wales is the Welsh office of Citizens Advice.

GOV.UK is a government-run information service that provides guidance for benefits, education, finance, living support and more.

Turn2us helps people in financial need gain access to welfare benefits, charitable grants and other financial help.

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General health

The British Dietetic Association offers advice about food and nutrition, including a set of fact sheets.

The British Heart Foundation has lots of information about leading a healthy lifestyle and keeping your heart healthy.

The British Nutrition Foundation offers reliable information about food and nutrition.

Immunodeficiency UK supports individuals and families affected by a primary and secondary immunodeficiency in the UK. They have information about cancer and immunodeficiency.

MedicAlert works in partnership with the NHS to sell ID bracelets, necklaces and watches marked with vital personal medical information.

The NHS website provides comprehensive health information to help you make the best choices about your health and lifestyle and make the most of NHS and social care services in England.

NHS Direct Wales is a health advice and information service covering common conditions, healthy lifestyles, NHS services and local support groups throughout Wales.

NHS Inform is a health information service from NHS Scotland covering common medical conditions, health and welfare topics, analysis of health-related news items, NHS Services and local support groups throughout Scotland.

Patient is an accredited, independent website providing health information for patients and professionals.

Screening programmes available in England, Northern Ireland, Scotland and Wales.

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The All Wales Therapeutics and Toxicology Centre works with patients, organisations, healthcare professionals, pharmaceutical companies and the Welsh Government to advise on new medicines in Wales.

The Cancer Drugs Fund (CDF) is a source of funding for some new cancer drugs in England.

The Electronic Medicines Compendium (eMC) provides up-to-date information about medicines licensed in the UK.

The European Medicines Agency (EMA) is responsible for monitoring the safety of medicines in the EU.

The Medicines and Healthcare products Regulatory Agency (MHRA) regulates medicines in the UK.

The National Institute for Health and Care Excellence (NICE) produces guidance on whether to make a drug available on the NHS.

The Scottish Medicines Consortium (SMC) provides advice about new medicines to the NHS in Scotland.

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Emotional wellbeing

Anxiety UK  offers a range of information and support services designed to help you control your anxiety. Their helpline is available from 9:30am until 5:30pm, Monday to Friday.

British Red Cross offers a range of support services, including emotional support if you feel lonely.

CALM stands for the Campaign Against Living Miserably, and is for anyone in distress who needs to talk. Their helpline is available 5pm until midnight, 365 days a year.

Every Mind Matters is a website created by the NHS that has advice and tips to help you to manage and maintain good mental health.

Mental Health Foundation carry out research to find out what is most helpful to support mental wellbeing. They have a set of podcasts that are designed to introduce skills and techniques that can help you live a mentally healthier life. 

Mind offer support and advice to anyone experiencing a mental health problem. They have information about all types of mental health problems and emotions on their website. They also operate an Infoline that you can call or email for information and support, open from 9am until 6pm Monday to Friday.

NHS Inform has information about mental wellbeing, including self-help resources that are free to access.

Royal Voluntary Service supports people, communities and the NHS. Support available for individuals includes social activities and one-to-one support.

SANE aims to improve the quality of life of anyone affected by mental health difficulties. They have a helpline, text service and online support forums. The helpline called SANEline is open from 4pm until 10pm, 365 days a year. 

Shout 85258 is a free, confidential, 24/7 text messaging support service for anyone who is struggling to cope. Text 'SHOUT' to 85258 to start a conversation with a trained volunteer.

The Great Get Together aims to bring people together, to build a more connected society. On a dedicated weekend, they aim to bring communities together to tackle loneliness.

Together is an initiative that aims to bring people together to build kinder and more connected communities.

YoungMinds is committed to improving the mental health and emotional wellbeing of children and young people. They have information about depression on their website.

Talking therapies

The British Association for Counselling and Psychotherapy is the professional association for members of the counselling professions in the UK. They offer an online find a therapist tool.

The British Psychological Society is the representative body for psychology and psychologists in the UK. Their website has information on how to find a psychologist.

The Counselling Directory is a nationwide database of qualified counsellors and psychotherapists. They offer an online find a therapist tool.

Relate offers a range of relationship support services to individuals, couples and families, including face-to-face counselling and online support. They also have relationship advice and tips on their website.

Samaritans is a phone support service available 24/7 to anyone who wants to talk, or anyone in crisis. Their helpline is available 24 hours a day, 365 days a year.

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Complementary therapy

The British Acupuncture Council (BAcC) is a professional, self-regulatory body for the practice of traditional acupuncture. They offer an online find a therapist tool.

The British Association of Art Therapists (BAAT) is the professional membership organisation for art therapists in the UK. They offer an online find a therapist tool.

The British Association for Music Therapy (BAMT) is the professional body for music therapy in the UK. They offer an online find a therapist tool.

The Complementary and Natural Healthcare Council (CNHC) provides a UK register of complementary health practitioners. They offer an online find a therapist tool.

The General Council for Soft Tissue Therapies (GCMT) is a forum for professional associations who represent massage and soft tissue therapies. Their website includes links to member associations who meet the GCMT's standards of education.

The Hypnotherapy Directory is a nationwide database of qualified hypnotherapists. They offer an online find a therapist tool.

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Fertility and pregnancy

British Fertility Society promotes sharing of practice and raising standards in the use of reproductive technologies. Their website offers a set of information resources for the public.

The British Infertility Counselling Association provides information and support on all aspects of infertility and assisted conception. They offer access to trained counsellors who can help you to explore and process your thoughts and feelings.

Cancer, fertility and me is a website that aims to help women affected by cancer make decisions about preserving their fertility.

Fertility Friends is a community forum dedicated to infertility and fertility support.

Fertility Network UK provides free and impartial support, advice, information and understanding for anyone affected by fertility issues. is an online resource that provides information on a range of health issues. You can watch videos of people talking about their experiences of fertility treatment and sharing their decision making processes. Search 'fertility' on their website.

The Human Fertilisation and Embryology Authority (HFEA) is a government agency that regulates UK fertility clinics and fertility research. On their website, you can read more about fertility treatments, find guidance on choosing a clinic, and search availability using their online database. You can also read about others’ experiences of fertility treatment.

Home Start supports families with day-to-day life. They offer home visits from volunteers who can give practical and emotional support. They also help you to access other local support services.

Mummy’s Star provides information and support to women who are affected by cancer during pregnancy and beyond.

The NHS website has information about fertility tests and treatments.

Pregnancy Choices provides free and confidential counselling for people before and after an abortion, miscarriage or stillbirth.

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In addition to some of the organisations listed in the fertility and pregnancy section, you might also find the following helpful: is an online resource that provides information on a range of health issues. It has videos of women talking about their experience of menopause.

Menopause Cafe is a not-for-profit organisation that runs in-person events for people to talk about menopause over refreshments in a confidential environment.

Menopause Matters is a website that gives information about the menopause, menopausal symptoms and treatment options.

The Daisy Network provides support, information and a friendly support network for women with Premature Ovarian Insufficiency (POI), which is sometimes called early menopause, or premature menopause.

The Menopause Charity offers information and support to women who are experiencing an early menopause.

Women's Heatlh Concern offers information and support to women about their gynaecological, sexual and post reproductive health. On their website, you can find an online tool to help find a British Menopause Society (BMS)-recognised menopause specialist 

Queermenopause offers information and support about menopause for people who identify as LGBTQIA+ (lesbian, gay, bisexual, transgender, queer, questioning, intersex, asexual and any other identities).

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Exercise and physical activity

Active Nation gives information about various types of physical activity, including where you can participate in these.

Macmillan Cancer Support help you to find activities in your area. They produce a Move more: Get active, feel good exercise booklet and DVD that is available to order online.

Maggie's centre's offer exercise classes. Their online tool allows you to search for your nearest centre.

Move Against Cancer provide programmes and support for people affected by cancer, including podcasts, an 8-week online programme, community-based 5k events and more.

Moving Medicine give resources for people affected by different conditions, including cancer, depression and others, to increase their weekly exercise levels. 

The British Association of Sport and Exercises (BASES) have an Expert Statement on Exercise and Cancer Survivorship, which outlines research findings and recommendations.

Trekstock provide support, guidance and connection for people in their 20s and 30s who are affected by cancer.

Ramblers Wellbeing Walks is a scheme of guided walks available across England run by Macmillan Cancer Support and The Ramblers. Find your nearest local scheme using the online search tool.

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End of life, bereavement and grief

Cruse Bereavement Support is a charity that offers support in several formats when someone has died. They offer support through their website, national helpline, live chat, and group or one-to-one support via telephone, zoom or in person.

Dying Matters is a campaign run by Hospice UK with the aim to encourage people to talk about dying and death.

GriefChat is a service that supports Lymphoma Action in offering professional bereavement counselling in various formats, free of charge.

The Good Grief Trust offers a range of support throughout bereavement. Their website includes information to help with practicalities, stories of others who have experienced a bereavement, and a UK map to help you find local sources of support.

Hospice UK provide information and support about end of life and hospice care.

The NHS website has an online search tool to help you find local bereavement services.

Marie Curie is a leading charity specialising in end of life. They provide nursing and hospice care, as well as information and support on all aspects of bereavement. Specifically, they have a directory of bereavement support.

The UK Government have a resource about practicalities when someone dies.

Talking to children about grief

Child bereavement UK, which offers a range of bereavement support services to families.

Hope Again is the youth website of Cruse Bereavement Support. It offers a safe place to enable young people to learn from other young people about ways of coping with grief.

Winston’s Wish offer support services to children and young people after the death of someone important.

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