Useful organisations

This is a list of UK organisations you may find helpful.

On this page

Lymphoma and other blood cancers

Skin lymphomas

Cancer 

Cancer in children and young people

Coping with the effects of cancer

Support for older people

Support for carers

Financial support

Bereavement

General health

Medicines

Counselling

Complementary therapy

Pregnancy

For further information and support, contact our Freephone helpline on 0808 808 5555 (9am–5pm Monday–Friday) or email us at information@lymphoma-action.org.uk. We may be able to put you in touch with someone else affected by a similar lymphoma through our buddy scheme. You might also find our online forums useful.

Lymphoma and other blood cancers

Bloodwise funds research into all types of blood cancer and supports anyone worried about blood cancer with expert information and advice.

The CLL Support Association provides information, support, education and advice to those affected by chronic lymphocytic leukaemia (CLL).

Leukaemia CARE supports anyone affected by blood cancer.

Anthony Nolan provides support, advice and information for people with blood cancer and their families, including information on bone marrow and stem cell transplants.

Delete Blood Cancer is an organisation whose mission is to increase the number of lifesaving blood stem cell donors.

NHS Blood and Transplant (NHSBT) provides a blood and transplant service to the NHS with links to blogs and information about blood donation, blood transfusion, peripheral blood stem cell collection and plasma exchange.

The Lymphoma Research Trust funds research into the treatment of lymphoma and makes grants to medical researchers who organise clinical trials.

Leukaemia & Lymphoma NI funds research into the causes and cures of leukaemia, lymphoma and myeloma in Northern Ireland.

The InterLymph Consortium is an open scientific forum for epidemiologic research in non-Hodgkin's lymphoma.

The Lymphoma Coalition is a worldwide network of lymphoma patient groups.

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Skin lymphomas

The British Association of Dermatologists provides a range of patient information leaflets, including one on mycosis fungoides and several on treatments for skin lymphomas.

DermNet NZ, the website of the New Zealand Dermatological Society, produces detailed, illustrated information about skin conditions including skin lymphomas. It is endorsed by the British Association of Dermatologists.

The Cutaneous Lymphoma Foundation is a US-based international organisation that provides support and comprehensive information for anyone affected by cutaneous lymphoma.

Skinship (UK) is a confidential dermatology helpline that supports anyone affected by a skin condition and lobbies for improved dermatology training in the UK.

Changing Faces provides advice, help and support for people with a facial disfigurement, particularly addressing the psychological and social effects. They also publish self-help booklets and videos.

Let’s Face It provides support and information to people who have facial disfigurements, including advice on camouflage make-up.

Look Good Feel Better supports women of all ages to manage the visible side effects of cancer treatment with free group and self-help skincare and make-up workshops.

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Cancer

Cancer Research UK fund research into many types of cancer. Their website has information on all types of cancers, including causes, prevention, treatment and coping strategies.

Cancer Focus Northern Ireland supports cancer patients and their families in Northern Ireland.

Macmillan Cancer Support provides support for people with all types of cancer from diagnosis through treatment and beyond.

Maggie’s provides free practical, emotional and social support to people with cancer and their family and friends.

Marie Curie gives care and support to people living with any terminal illness and their families.

Penny Brohn UK helps people and those close to them to live well with the impact of cancer through physical, emotional and spiritual support.

Tenovus Cancer Care provides treatment, support and practical advice to cancer patients and their families in the community.

The International Agency for Research on Cancer (IARC) is the specialised cancer agency of the World Health Organization. It promotes international collaboration in cancer research.

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Cancer in children and young people

Childhood Cancer Parents Alliance (CCPA) is a group of parent-run organisations that work together to support children and young adults with cancer.

Children’s Cancer and Leukaemia Group (CCLG), the national association of healthcare professionals involved in the treatment of children with cancer, provides information for patients and families.

CLIC Sargent provides specialist support for children and young people with cancer and their families.

Make-A-Wish Foundation UK grants wishes to children and young people (aged 3 to 17) with life-threatening illnesses.

Rays of Sunshine Children’s Charity grants wishes to children and young people (aged 3 to 18) with life-threatening illnesses.

Shine Cancer Support is for adults in their 20s, 30s and 40s who have a cancer diagnosis. They offer a variety of support, including online forums, support events and information.

Starlight Children’s Foundation aims to brighten the lives of seriously ill children (aged 4 to 18) by granting wishes and providing in-hospital entertainment for children to take their minds off their illness.

The Teenage Cancer Trust provides information, care and support so young people don’t have to face cancer alone.

Teenage and Young Adults with Cancer (TYAC) provides information, training and support to health professionals caring for young people with cancer.

Youth Cancer Trust provides free activity-based holidays for young people (aged 14 to 30) who have had or currently have cancer.

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Coping with the effects of cancer

Pain Concern provides information and support to people living with pain (including neuropathic pain).

Lymphoedema Support Network (LSN) provides information and support to people with lymphoedema due to any cause and those ‘at risk’ of developing the condition.

My new hair provides public advice and supports a national network of independent salons and professionals who offer a wig styling service for people suffering from cancer and medical hair loss.

Self management UK is an organisation that offers self-management courses for people living with long-term health conditions.

The Depression Alliance works to relieve and prevent depression by providing information about symptoms, drug and non-drug treatments and support services.

The Bladder and Bowel Community provides information and support services, including a confidential helpline, for anyone affected by bowel and bladder conditions.

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Support for older people

Age UK provides information and advice for older people about benefits, housing, care as well as health and wellbeing.

Independent Age provides free information and advice for older people and their families on care and support, money and benefits and health and mobility.

Silver Line is a confidential, free helpline for older people offering information, friendship and advice; link callers to local groups and services; offer regular befriending calls; protect and support those who are suffering abuse and neglect.

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Support for carers

Carers UK provides free and confidential information for carers across the UK.

Carers Northern Ireland is the Northern Ireland office of Carers UK.

Carers Scotland is the Scottish office of Carers UK.

Carers Wales is the Welsh office of Carers UK.

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Financial support

Citizens Advice helps people resolve legal, money, housing, consumer and other problems by providing free, independent and confidential advice.

Citizens Advice Northern Ireland is the Northern Ireland office of Citizens Advice.

Citizens Advice Scotland is the Scottish office of Citizens Advice.

Citizens Advice Wales is the Welsh office of Citizens Advice.

GOV.UK is a government-run information service that outlines what benefits you might be entitled to with links to online benefits calculators and information about how to claim benefits.

Turn2us helps people in financial need gain access to welfare benefits, charitable grants and other financial help.

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Bereavement

Cruse Bereavement Care offers support, advice and information to children, young people and adults affected by the death of someone close.

Cruse Bereavement Care Northern Ireland is the Northern Ireland office of Cruse Bereavement Care.

Cruse Bereavement Care Scotland is the Scottish office of Cruse Bereavement Care.

Cruse Bereavement Care Wales is the Welsh office of Cruse Bereavement Care.

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General health

NHS Choices provides comprehensive health information to help you make the best choices about your health and lifestyle and make the most of NHS and social care services in England.

NHS Inform is a health information service from NHS Scotland covering common medical conditions, health and welfare topics, analysis of health-related news items, NHS Services and local support groups throughout Scotland.

NHS Direct Wales is a health advice and information service covering common conditions, healthy lifestyles, NHS services and local support groups throughout Wales.

Patient is an accredited, independent website providing health information for patients and professionals.

British Heart Foundation has lots of information about leading a healthy lifestyle.

Primary Immunodeficiency UK (PID UK) supports individuals and families affected by a primary immunodeficiency in the UK. They have information about cancer and immunodeficiency.

MedicAlert works in partnership with the NHS to sell ID bracelets, necklaces and watches marked with vital personal medical information.

The British Dietetic Association offers advice about food and nutrition, including a set of fact sheets.

The British Nutrition Foundation offers impartial information about food and nutrition.

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Medicines

The European Medicines Agency (EMA) is responsible for monitoring the safety of medicines in the EU.

The Medicines and Healthcare products Regulatory Agency (MHRA) regulates medicines in the UK.

The National Institute for Health and Care Excellence (NICE) produces guidance on whether to make a drug available on the NHS.

The Scottish Medicines Consortium (SMC) provides advice about new medicines to the NHS in Scotland.

The All Wales Medicines Strategy Group (AWMSG) advises the Welsh Government on new and future developments in healthcare.

The Cancer Drugs Fund (CDF) is a source of funding for some new cancer drugs in England.

The Electronic Medicines Compendium (eMC) provides up-to-date prescribing and patient information for medicines licensed in the UK.

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Counselling

The British Association for Counselling and Psychotherapy is the professional association for members of the counselling professions in the UK. They offer an online find a therapist tool.

The Counselling Directory is a nationwide database of qualified counsellors and psychotherapists. They offer an online find a therapist tool.

Samaritans is a phone support service available 24/7 to anyone who wants to talk.

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Complementary therapy

The Complementary and Natural Healthcare Council (CNHC) provides a UK register of complementary health practitioners. They offer an online find a therapist tool.

The Council for Soft Tissue Therapies is a forum for professional associations who represent massage and soft tissue therapies. They offer an online find a therapist tool.

The British Acupuncture Council (BAcC) is a professional, self-regulatory body for the practice of traditional acupuncture. They offer an online find a therapist tool.

The British Association of Art Therapists (BAAT) is the professional organisation for art therapists in the UK. They offer an online find a therapist tool.

The British Association for Music Therapy (BAMT) is the professional body for music therapy in the UK. They offer an online find a therapist tool.

The Hypnotherapy Directory is a nationwide database of qualified hypnotherapists. They offer an online find a therapist tool.

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Pregnancy

Mummy’s Star provides information and support to women who are affected by cancer during pregnancy.

Pregnancy Choices provides free and confidential counselling for women before and after an abortion or miscarriage.

Home Start supports families with day-to-day life. They offer home visits from volunteers who can give practical and emotional support. They also help you to access other local support services.

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