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Below are currently active research projects. Please contact the project coordinator or contact directly for more information. Please note that Lymphoma Action is not connected to, nor responsible for, any of the projects listed here.
Research project: CAR T-cell therapy - personal experiences
Clinical Psychology Doctoral Student Huw Williams is conducting a research project exploring people's experiences of receiving or supporting someone who has received CAR T-Cell Therapy. He would like to hear individuals over the age of 18 who have either undergone CAR T-cell therapy for blood cancer and are a minimum of 8 weeks post-treatment or who are a family member or informal caregiver to someone who has undergone CAR T-cell therapy. The research will involve participating in an online interview for approximately 1 hour.
Contact Huw Williams at V8123742@live.tees.ac.uk for more information
Research project: BAME Unmet Needs project, University of Hertfordshire
Researchers at the University of Hertfordshire are exploring perspectives of healthcare professionals on the meaning of culturally responsive blood cancer care and examples of this care in practice. We would like to interview healthcare professionals who currently provide care for people living with blood cancer. If you decide to take part, the online interview will take approximately 45-60 minutes and all responses will be anonymised prior to analysis.
Contact Dr Bobbie Smith at email@example.com for more information
Research project: Study of lung cancer screening decision making after Hodgkin lymphoma
Do you support patients treated for Hodgkin lymphoma?
Nurses and clinicians are sought for a study exploring how Hodgkin lymphoma patients would make a decision about lung cancer screening and how healthcare professionals can best support them. The study involves a telephone interview using Zoom which will last around 20 minutes. Compensation will be offered for your time.
For more information or to express an interest email firstname.lastname@example.org
The following reports were written by Dr Catriona Gilmour Hamilton, Haematology Quality Manager: Patient Experience and Engagement, Oxford University Hospitals NHS Foundation Trust. They focus on patient-reported feedback on telephone appointments and appointments using the Attend Anywhere service, during 2020. The third document outlines guidance produced, based on this feedback, to support colleagues to deliver remote appointments effectively for their patients.
This information sheet was created by Charlotte Bloodworth and Dr Simona Gatto from University Hospital of Wales, Cardiff and Dr Shirley D’Sa from University College London Hospital. It is an IgM MGUS information sheet written for colleagues and patients. If you would like to know more about this information and how you can use it please contact Charlotte Bloodworth at Charlotte.Bloodworth@wales.nhs.uk
Share your work
Do you have some ongoing research, research reports or information resources that you would like to share here? Please email us.
Please note that Lymphoma Action takes no responsibility for the accuracy of the information on these projects, and including these projects on this page should not be taken to suggest any involvement or recommendation of the individual projects.