Live your Life Facilitator

This page has the information and resources for your role as a Live your Life Facilitator. We've included topics you might like to know about, or direct attendees to during the workshop, and have grouped these below by the module that they relate to.

Lymphoma Action policies and procedures

Below you'll find some quick links, but you can access all our policies and procedures here.

Incident report form
Personal safety checklist
Lone volunteering procedure
Safeguarding policy

Live your Life Facilitator role guidance

Live your Life Programme Workbook
Live your Life Facilitator role description

Don't forget to log your volunteering hours! Fill in our webform at lymphoma-action.org.uk/log-hours

Useful pages and resources for each module

Module 1- Know your lymphoma
Module 2 - The emotional impact of lymphoma
Module 3 - Exercise and staying active
Module 4 - Diet and nutrition
Module 5 - Practical aspects of living with lymphoma
Bonus material

A few lymphoma statistics:

  • Every 26 minutes someone is diagnosed with lymphoma
  • 55 people per day receive a life changing lymphoma diagnosis
  • Over 20,000 people every year receive a lymphoma diagnosis

Animations

About Lymphoma Action animation (plays on YouTube)
What is lymphoma animation (plays on YouTube)

Module 1 - Know your lymphoma

Understanding relapse in lymphoma

In this podcast, Advanced Nurse Practitioner Charlotte Bloodworth explains what relapsing in lymphoma means, strategies for treating and managing relapse, and support strategies for coping with concerns around relapse.

Also available on Apple Podcasts and Spotify

Module 2 - The emotional impact of lymphoma

Focusing on your emotional wellbeing and mental health

Watch our video on emotional wellbeing and mental health. In conversation with Lymphoma Action's Karen Bonell, psychologist Angela Waind talks about tips and strategies for looking after your wellbeing, and what services are available to help.

Module 3 - Exercise and staying active

Exercise and keeping physically active

Services Manager Karen Bonell talks to Lifestyle Advisor (cancer exercise specialist) Jane Mullarkey about how to keep active and exercise while at home

Module 4 - Diet and nutrition

Diet and nutrition

Services Manager Manager Karen Bonell talks to Lymphoma CNS Sarah Wells about diet, nutrition, how to eat well and how to manage eating-related side effects of lymphoma and treatment.

Module 5 - The practical aspects (signposting)

Practical toolkit: Fatigue and physical exercise

Jennifer Woods, Senior Haematology Oncology Occupational Therapist, and Aimee Green, Specialist Haematology Physiotherapist, The Christie

Bonus material

Helpline Services - this page gives the details of our helpline services and what they do - and don't - offer. It also gives details of our interpreting service Language is Everything.
Support for you - general section on accessing all of our support sections of the website

Lymphoma Matters magazine

Lymphoma Voices (podcast)

Podcasts - library of all podcasts
Why I find lymphoma so interesting - Dr Graham Collins

Other information that may be of interest

  • All things COVID - Treatment, living with COVID and how to stay safe
  • News - we usually publish a couple of news blogs each week, and this page will take you to the archive of news articles.
  • Personal stories - our library of personal stories, which you can filter by types of lymphoma and other topics.
  • Accessible information - we have a range of Easy Read booklets and other resources that might be helpful for some individuals.
  • Recipe ideas from Macmillan

Webinars from other organisations

CLL Support run events and webinars on SLL (small lymphocytic lymphoma) and CLL (chronic lymphocytic leukaemia). You can find full details on the CLL Support website. For more information, please contact CLL Support direct or email webinar@cllsupport.org.uk

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