About Lymphoma TrialsLink

If you would like to know more about Lymphoma TrialsLink, you might find these frequently asked questions and answers helpful. You can also email us with questions and comments to trialslink@lymphoma-action.org.uk.

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Why has Lymphoma Action developed Lymphoma TrialsLink?

How is Lymphoma TrialsLink funded?

How do you source your lymphoma trials information for the database?

What lymphoma trials are not covered by TrialsLink?

How often is content updated?

How can I find a trial that might be suitable for me?

How can I narrow my results down?

What if there isn’t a trial for my type of lymphoma?

If there is a trial for my type of lymphoma, how can I know if I am eligible?

You mention a trial for my type of lymphoma, but I’ve been told I’m not eligible.

Why has Lymphoma Action developed Lymphoma TrialsLink?

Deciding whether to enter a clinical trial is an important decision that you should make in consultation with your medical team. We have developed Lymphoma TrialsLink as a place to find information about lymphoma clinical trials – what they are and what they involve – and to search for a UK-based clinical trial that might be suitable for you. Our aim is to help you to make informed decisions about your treatment. 

Clinical trials play an important role in advancing treatments and improving outcomes for people affected by lymphoma. We have a news section with the latest updates on lymphoma trials.   

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How is Lymphoma TrialsLink funded?

Lymphoma TrialsLink is funded entirely by voluntary donations from Lymphoma Action supporters.

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How do you source your lymphoma trials information for the database?

Initially, we search a number of databases that list trials in many disease areas. From this, we create a list of lymphoma drug treatment trials, non-drug and non-treatment studies, and significant non-lymphoma specific trials (cross-tumoural treatment trials) that include people with lymphoma. We then contact clinical research teams to confirm that we have accurate information for each trial about treatments, closing dates and sites recruiting participants. We write individual trial records that are available in the find a trial section. Each record has been expert-reviewed in line with the Information Standard.

Please note that we can only include a record in Lymphoma TrialsLink when it has been expert-reviewed so there can be delays in records being added. We may only become aware of a trial when it has opened for recruitment so there can be a delay between a trial opening and it being included in Lymphoma TrialsLink. 

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What lymphoma trials are covered by TrialsLink?

We cover phase 1, 2 and 3 clinical trials, non-drug and non-treatment studies, and significant non-lymphoma specific trials (cross-tumoural treatment trials)

Phase 1 trials are very early stage trials and sometimes only recruit small numbers of people with lymphoma. They can open and close quickly and often have frequent changes. Due to the nature of these trials, information may be limited or may have changed since we published the record.

It is very important that you discuss any trial with your medical team if you are interested in taking part. They can give you the latest advice on whether you might be eligible for the trial and how you can take part.

Phase 4 trials are not covered by Lymphoma TrialsLink. These trials find out more about a treatment once it has been approved for use. They are usually carried out in people who are already having that treatment as part of their care.

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How often is content updated?

Trials are added and updated at least monthly to make sure that our records are as accurate and up-to-date as possible. We regularly post items to our news section.

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How can I find a trial that might be suitable for me?

You can search the Lymphoma TrialsLink database by type of lymphoma. Select your type of lymphoma from the drop-down menu and click 'apply filter'. This will bring up all the trials and research studies that include people with that type of lymphoma.

Only some of the trials in the list are only recruiting people with the type of lymphoma you selected. Many trials recruit people with several types of lymphoma, any type of lymphoma, or even people with other cancers as well as people with lymphoma.  

Each trial summary gives further information about who can enter.

We recommend that you print off the details for any trial you think might be relevant for you and share them with your consultant, who can give you further advice based on your individual circumstances.

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How can I narrow my results down?

There are several ways to narrow your results down if your search by type of lymphoma produces too many results. For example:

  • if you are looking for a trial to enter, select 'open' to show only trials currently open in the UK for new participants. 
  • if you have already had treatment for your lymphoma but you need more treatment, or you are looking for possible options in case your lymphoma gets worse, select 'relapsed' for lymphoma that has come back or 'refractory' for lymphoma that didn't respond to your previous treatment.
  • If you know how far you would be willing to travel for a clinical trial, you can search by location.
  • Select your age group - some trials are for people of any age but many are tailored for certain age groups.

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What if there isn’t a trial for my type of lymphoma?

Unfortunately, it may be that there isn’t currently a trial suitable as a treatment option for your lymphoma type. We add clinical trials as soon as we can when they open for recruitment. You can talk to your medical team about other options.

If you haven’t found a trial for your type of lymphoma and you’d like to speak to someone for emotional support, you can call our Information and Support Team on 0808 808 5555, Mon-Fri, 10am-3pm. You can also email the Lymphoma TrialsLink team at trialslink@lymphoma-action.org.uk.

We also have an online clinical trials forum where you can share experiences and chat to others about clinical trials.

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If there is a trial for my type of lymphoma, how can I know if I am eligible?

You will need a referral from your consultant to take part in a clinical trial at another centre. You can print out the information about clinical trials you are interested in and discuss it with your medical team. Your medical team have detailed knowledge of your medical history and are best placed to determine if you are eligible to enter a given trial. 

You can also contact the Lymphoma TrialsLink team via our enquiry form on each record. We can help with general questions about clinical trials and, if appropriate, we might be able to put you in contact with the team running a trial. 

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You mention a trial for my type of lymphoma, but I’ve been told I’m not eligible

It is always best to talk to your medical team about your options.

The Lymphoma Action Information and Support Team can offer emotional support and has experience helping patients, their family and friends through difficult times. You can call our Helpline team on 0808 808 5555, Mon-Fri, 10am-3pm. You can also email us at trialslink@lymphoma-action.org.uk.

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