About Lymphoma TrialsLink

If you would like to know more about Lymphoma TrialsLink, you might find these frequently asked questions and answers helpful. You can also email us with questions and comments at trialslink@lymphoma-action.org.uk.

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Why has Lymphoma Action developed Lymphoma TrialsLink?

How is Lymphoma TrialsLink funded?

How do you source your lymphoma trials information for the database?

What lymphoma trials are not covered by Lymphoma TrialsLink?

How often is content updated?

How can I find a trial that might be suitable for me?

What if there isn’t a trial for my type of lymphoma?

If there is a trial for my type of lymphoma, how can I know if I am eligible?

You mention a trial for my type of lymphoma, but I’ve been told I’m not eligible

Why has Lymphoma Action developed Lymphoma TrialsLink?

Deciding whether to enter a clinical trial is an important decision that you should make with your medical team. We have developed Lymphoma TrialsLink as a place to find information about lymphoma clinical trials – what they are and what they involve – and to search for a UK-based clinical trial that might be suitable for you. Our aim is to help you to make informed decisions about your lymphoma treatment. 

Clinical trials play an important role in advancing treatments and improving outcomes for people affected by lymphoma. We have a news section with the latest updates on lymphoma trials.   

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How is Lymphoma TrialsLink funded?

Lymphoma TrialsLink is funded by voluntary donations from Lymphoma Action supporters. We’d like to thank everyone who has contributed towards the charity and the running of Lymphoma TrialsLink. 

Lymphoma TrialsLink can also be part-funded by external companies, including healthcare and pharmaceutical companies. In accordance with how we work with healthcare and pharmaceutical companies, they have no influence over the content of the information we provide. 

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How do you source your lymphoma trials information for the database?

Initially, we search a number of databases that list trials in many disease areas. From this, we create a list of lymphoma drug treatment trials, non-drug and non-treatment studies, and significant non-lymphoma specific trials (cross-tumoural treatment trials) that include people with lymphoma. We then contact clinical research teams to confirm that we have accurate information for each trial about treatments, closing dates and sites recruiting participants. We write individual trial summaries, which can be found in the find a trial section. Each summary has been expert-reviewed by a member of a clinical research team who is working on the specific trial.

Please note that we only include a summary on Lymphoma TrialsLink after it has been expert-reviewed. Sometimes we only become aware of a trial after it has opened for recruitment. This means there can be a delay between a trial opening and it being included on Lymphoma TrialsLink. 

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What lymphoma trials are covered by Lymphoma TrialsLink?

We cover phase 1, 2 and 3 clinical trials, non-drug and non-treatment studies, and significant non-lymphoma specific trials (cross-tumoural treatment trials).

Phase 1 trials are very early stage trials and sometimes only recruit small numbers of people with lymphoma. They can open and close quickly and often have frequent changes. Due to the nature of these trials, information may be limited or may have changed since we published the record.

It is very important that you discuss any trial with your medical team if you are interested in taking part. They can give you the latest advice on whether you might be eligible for the trial and how you can take part.

Phase 4 trials are not covered by Lymphoma TrialsLink. These trials find out more about a treatment once it has been approved for use. They are usually carried out in people who are already having that treatment as part of their care.

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How often is content updated?

Trials are added and updated at least monthly to make sure that our records are as accurate and up-to-date as possible. We regularly post items to our news section, too.

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How can I find a trial that might be suitable for me?

You can search the Lymphoma TrialsLink database by type of lymphoma. Select your type of lymphoma from the drop-down menu and click 'apply filter'. This will bring up all the trials and research studies that include people with that type of lymphoma.

Some of the trials in the list may only be recruiting people with the type of lymphoma you selected. However, many trials recruit people with several types of lymphoma, any type of lymphoma, or even people with other cancers as well as people with lymphoma.  

Each trial summary gives information about what the trial is testing, what taking part will involve, and who might be eligible to enter.

We recommend that you print off the summary of any trial you think might be relevant for you and share it with your consultant, who can give you further advice based on your individual circumstances.

How can I narrow my results down?

There are several ways to narrow your results down if your search by type of lymphoma produces too many results. For example:

  • If you are looking for a trial to enter, select 'open' to show only trials currently open in the UK for new participants. 
  • If you have already had treatment for your lymphoma but you need more treatment, or you are looking for possible options in case your lymphoma gets worse, select 'relapsed' for lymphoma that has come back or 'refractory' for lymphoma that didn't respond to your previous treatment.
  • If you know how far you would be willing to travel for a clinical trial, you can search by location.
  • Select your age group – some trials are for people of any age but many are tailored for certain age groups.

If you often use Lymphoma TrialsLink to look for new trials that have been added to the database, you can also search for trials that have been added in the last 12 weeks.

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What if there isn’t a trial for my type of lymphoma?

It may be that there isn’t currently a trial suitable for you. We add clinical trials as soon as we can when they open for recruitment. New clinical trials do open for people with lymphoma throughout the year, so come back to Lymphoma TrialsLink to see if there are new trials open that might be suitable for you. 

If there are no clinical trials suitable for you, talk to your medical team about other options.

If you haven’t found a trial for your type of lymphoma and you’d like to speak to someone for emotional support, you can call our Information and Support Team on 0808 808 5555, Monday to Friday, 10am to 3pm. They are also available via Live Chat on our website. 

For further information about clinical trials, you can email the Lymphoma TrialsLink Team at trialslink@lymphoma-action.org.uk. We have a booklet about clinical trials which is available free of charge.

We also have an online clinical trials forum where you can share experiences and chat to others about clinical trials.

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If there is a trial for my type of lymphoma, how do I know if I am eligible?

Our trial summaries list the main criteria used to decide if somebody is or isn’t suitable to take part in each particular trial. However, lots of individual factors are also taken into account. It is very important that you discuss any trial with your medical team if you are interested in taking part. They can give you the latest advice on whether you might be eligible for the trial and how you can take part.

We recommend that you print off the summary of any trial you think might be relevant for you and discuss it with your consultant, who can give you further advice based on your individual circumstances. Your medical team have detailed knowledge of your medical history and are best placed to determine if you are eligible to enter a given trial. 

If you are eligible to take part in a trial at a different hospital or treatment centre, you will need a referral from your consultant to take part. 

You can also contact the Lymphoma TrialsLink Team via our enquiry form, which can be found on each trial summary. We can help with general questions about clinical trials.

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You mention a trial for my type of lymphoma, but I’ve been told I’m not eligible

All clinical trials have strict eligibility criteria governing who can and can’t take part. These are important because they make sure that the clinical trial is safe for the people who take part and that it compares different treatments fairly in people who have similar characteristics (such as type or stage of lymphoma).

Although it can be disappointing to find out you don’t meet the eligibility criteria for a trial, it is for your own safety and to gain valid results from a clinical trial. It is always best to talk to your medical team about your options.

The Lymphoma Action Information and Support Team can offer emotional support and has experience helping patients, their family and friends through difficult times. You can call us on 0808 808 5555, Monday to Friday, 10am to 3pm. You can also email us at trialslink@lymphoma-action.org.uk.

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Further reading