A lymphoma survivorship study shows that people want better preparation for the transition from active treatment to follow-up care.
A new study published in March examined the experiences of people who finished treatment for lymphoma in Ireland. The study identified five main challenges to adjusting to life beyond lymphoma treatment:
- dealing with uncertainty
- changed relationships
- returning to work
- extended recovery time
- concerns for the future.
Some study participants did not remember having any discussions on healthy lifestyles, signs of late effects or recommended screening programmes.
The study highlights the need for a dedicated ‘end of treatment’ visit to help people prepare for life beyond lymphoma, including specific advice on the signs and symptoms of relapse and late effects of treatment. This is recommended in the recovery package being rolled out across the NHS to help people live well after cancer treatment.
If you have recently finished treatment or you are living with lymphoma, you may be interested in one of our one-day, interactive Live your Life events. These one-day workshops give you practical advice and support to help you live with and beyond lymphoma.
1 April 2019