Useful organisations

This is a list of organisations you may find helpful.

On this page

Lymphoma and other blood cancers

Skin (cutaneous) lymphomas

Cancer – all types

Cancer in children and young people

Coping with the effects of cancer

Blood, bone marrow and stem cell services

Support for older people

Support for people with HIV

Support for carers

Financial support

Bereavement

General health

Medicines

Emotional wellbeing, including talking therapies

Complementary therapy

Fertility and pregnancy

For further information and support, contact our Helpline (freephone) on 0808 808 5555 (Monday to Friday, 10am to 3pm), email us at information@lymphoma-action.org.uk or via Live Chat. We might be able to put you in touch with someone else affected by a similar lymphoma through our Buddy Service. You might also find our online Community Forum useful.

Lymphoma and other blood cancers

Bloodwise funds research into all types of blood cancer and supports anyone worried about blood cancer with expert information and advice.

The CLL Support Association provides information, support, education and advice to those affected by chronic lymphocytic leukaemia (CLL).

The InterLymph Consortium is an open scientific forum for epidemiologic research in non-Hodgkin lymphoma.

Leukaemia CARE supports anyone affected by blood cancer.

Leukaemia & Lymphoma NI funds research into the causes and cures of leukaemia, lymphoma and myeloma in Northern Ireland.

The Lymphoma Coalition is a worldwide network of lymphoma patient groups. We are a member of the Lymphoma Coalition.

The Lymphoma Research Trust funds research into the treatment of lymphoma and makes grants to medical researchers who organise clinical trials.

WMUK provides information about Waldenström’s macroglobulinaemia (WM) and works works closely with medical professionals with the aim to improve research and treatment for WM.

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Skin (cutaneous) lymphomas

The British Association of Dermatologists provides a range of patient information leaflets, including one on mycosis fungoides and several on treatments for skin lymphomas.

The Cutaneous Lymphoma Foundation is a US-based international organisation that provides support and information for anyone affected by cutaneous lymphoma.

DermNet NZ, the website of the New Zealand Dermatological Society, produces detailed, illustrated information about skin conditions including skin lymphomas. It is endorsed by the British Association of Dermatologists.

Skinship (UK) is a confidential dermatology helpline that supports anyone affected by a skin condition and lobbies for improved dermatology training in the UK.

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Cancer – all types

Cancer Focus Northern Ireland supports people affected by cancer and their families in Northern Ireland.

Cancer Research UK funds research into many types of cancer. Their website has information on all types of cancers, including causes, prevention, treatment and coping strategies.

The International Agency for Research on Cancer (IARC) is the specialised cancer agency of the World Health Organization. It promotes international collaboration in cancer research.

Macmillan Cancer Support provides support for people with all types of cancer from diagnosis through treatment and beyond.

Maggie’s provides free practical, emotional, financial and social support to people with cancer and their family and friends.

Marie Curie gives care and support to people living with any terminal illness and their families.

Penny Brohn UK helps people and those close to them to live well with the impact of cancer through physical, emotional and spiritual support.

Shine Cancer Support is for adults in their 20s, 30s and 40s who have a cancer diagnosis. They offer a variety of support, including online forums, support events and information.

Tenovus Cancer Care is a Welsh cancer charity who provides treatment, support and practical advice to cancer patients and their families in the community.

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Cancer in children and young people

Children’s Cancer and Leukaemia Group (CCLG), the national association of healthcare professionals involved in the treatment of children with cancer, provides information for patients and families.

Childhood Cancer Parents Alliance (CCPA) is a group of parent-run organisations that work together to support children and young adults with cancer, and their families.

Make-A-Wish Foundation UK grants wishes to children and young people (aged 3 to 17) with critical illnesses.

Rays of Sunshine Children’s Charity grants wishes to children and young people (aged 3 to 18) with serious or life-limiting illnesses.

Starlight Children’s Foundation aims to brighten the lives of seriously ill children (aged 4 to 18) by granting wishes and providing in-hospital entertainment for children to take their minds off their illness.

Teenage and Young Adults with Cancer (TYAC) provides information, training and support to health professionals caring for young people with cancer.

The Teenage Cancer Trust provides information, care and support so young people don’t have to face cancer alone.

Young Lives vs Cancer: CLIC Sargent provides specialist support for children and young people with cancer, and their families.

The Youth Cancer Trust provides free activity-based holidays for young people (aged 14 to 30) who have had or currently have cancer.

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Coping with the effects of cancer

The Bladder and Bowel Community provides information and support services for anyone affected by bowel and bladder conditions. They also produce a toilet access card, called Just Can't Wait.

Changing Faces provides advice, help and support for people with a facial disfigurement, particularly addressing the psychological and social effects. They also publish self-help booklets and videos.

Let’s Face It provides support and information to people who have facial disfigurements, including advice on camouflage make-up.

Look Good Feel Better supports people to manage the visible side effects of cancer treatment with free group and self-help skincare and make-up workshops.

Lymphoedema Support Network (LSN) provides information and support to people with lymphoedema due to any cause and those ‘at risk’ of developing the condition.

My new hair provides advice and supports a national network of independent salons and professionals who offer a wig styling service for people with cancer and medical hair loss.

Pain Concern provides information and support to people living with pain (including neuropathic pain).

Self management UK is an organisation that offers self-management courses for people living with long-term health conditions, and their carers.

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Blood, bone marrow and stem cell services

Anthony Nolan provides support and information for people with blood cancer and their families, including information on bone marrow and stem cell transplants.

DKMS is an organisation whose mission is to increase the number of lifesaving blood stem cell donors.

NHS Blood and Transplant (NHSBT) provides a blood and transplant service to the NHS with links to blogs and information about blood donation, blood transfusion, peripheral blood stem cell collection and plasma exchange.

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Support for older people

Age UK provides information and advice for older people about benefits, housing and care, as well as health and wellbeing.

Independent Age provides free information and advice for older people and their families on care and support, money and benefits and health and mobility.

Silver Line is a confidential, free 24-hour helpline for older people offering information, friendship and advice. They link callers to local groups and services, offer regular friendship calls, and protect and support those who are suffering abuse and neglect.

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Support for people with HIV

AVERT provides online information about HIV and AIDS to help people make informed choices and live healthily.

HIV iBase provides up-to-date information about HIV treatment.

NAM Aidsmap provides independent, clear and accurate information about HIV and AIDS.

The National AIDS Trust (NAT) is a UK charity that champions the rights of people living with HIV and campaigns for change.

Positively UK provides support, advocacy and information to everyone living with HIV to manage any aspect of their diagnosis, care and life with HIV.

The Terrence Higgins Trust offers advice and support to help people with HIV manage their condition long term, with local centres across the UK.

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Support for carers

Carers UK provides free and confidential information for carers across the UK.

Carers Northern Ireland is the Northern Ireland office of Carers UK.

Carers Scotland is the Scottish office of Carers UK.

Carers Wales is the Welsh office of Carers UK.

Carers Trust provide information and advice for carers across the UK.

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Financial support

Citizens Advice helps people resolve legal, money, housing, consumer and other problems by providing free, independent and confidential advice.

Citizens Advice Northern Ireland is the Northern Ireland office of Citizens Advice.

Citizens Advice Scotland is the Scottish office of Citizens Advice.

Citizens Advice Wales is the Welsh office of Citizens Advice.

GOV.UK is a government-run information service that outlines what benefits you might be entitled to with links to online benefits calculators and information about how to claim benefits.

Turn2us helps people in financial need gain access to welfare benefits, charitable grants and other financial help.

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Bereavement

Cruse Bereavement Care offers support, advice and information to children, young people and adults affected by the death of someone close.

Cruse Bereavement Care Northern Ireland is the Northern Ireland office of Cruse Bereavement Care.

Cruse Bereavement Care Scotland is the Scottish office of Cruse Bereavement Care.

Cruse Bereavement Care Wales is the Welsh office of Cruse Bereavement Care.

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General health

The British Dietetic Association offers advice about food and nutrition, including a set of fact sheets.

The British Heart Foundation has lots of information about leading a healthy lifestyle and keeping your heart healthy.

The British Nutrition Foundation offers impartial information about food and nutrition.

MedicAlert works in partnership with the NHS to sell ID bracelets, necklaces and watches marked with vital personal medical information.

The NHS website provides comprehensive health information to help you make the best choices about your health and lifestyle and make the most of NHS and social care services in England.

NHS Direct Wales is a health advice and information service covering common conditions, healthy lifestyles, NHS services and local support groups throughout Wales.

NHS Inform is a health information service from NHS Scotland covering common medical conditions, health and welfare topics, analysis of health-related news items, NHS Services and local support groups throughout Scotland.

Patient is an accredited, independent website providing health information for patients and professionals.

Primary Immunodeficiency UK (PID UK) supports individuals and families affected by a primary immunodeficiency in the UK. They have information about cancer and immunodeficiency.

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Medicines

The All Wales Medicines Strategy Group (AWMSG) advises the Welsh Government on new and future developments in healthcare.

The Cancer Drugs Fund (CDF) is a source of funding for some new cancer drugs in England.

The Electronic Medicines Compendium (eMC) provides up-to-date prescribing and patient information for medicines licensed in the UK.

The European Medicines Agency (EMA) is responsible for monitoring the safety of medicines in the EU.

The Medicines and Healthcare products Regulatory Agency (MHRA) regulates medicines in the UK.

The National Institute for Health and Care Excellence (NICE) produces guidance on whether to make a drug available on the NHS.

The Scottish Medicines Consortium (SMC) provides advice about new medicines to the NHS in Scotland.

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Emotional wellbeing

Depression Alliance offer information and advice about depression. They have a range of resources, including videos and support groups for people affected by depression.

Mental Health Foundation have a set of podcasts that are designed to introduce skills and techniques that can help you live a mentally healthier life. 

MIND offer support and advice to anyone experiencing a mental health problem. They have information about depression on their website. They also operate a helpline that you can text or call.

Moodjuice is an online self-help resource to help you cope with emotional problems in a solution-focussed way.

SANE aims to improve the quality of life of anyone affected by mental health difficulties. They have a helpline, text service and online support forums.  

YoungMinds is committed to improving the mental health and emotional wellbeing of children and young people. They have information about depression on their website.

Talking therapies

The British Association for Counselling and Psychotherapy is the professional association for members of the counselling professions in the UK. They offer an online find a therapist tool.

The British Psychological Society is the representative body for psychology and psychologists in the UK. Their website has information on how to find a psychologist.

The Counselling Directory is a nationwide database of qualified counsellors and psychotherapists. They offer an online find a therapist tool.

Samaritans is a phone support service available 24/7 to anyone who wants to talk, or anyone in crisis.

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Complementary therapy

The British Acupuncture Council (BAcC) is a professional, self-regulatory body for the practice of traditional acupuncture. They offer an online find a therapist tool.

The British Association of Art Therapists (BAAT) is the professional organisation for art therapists in the UK. They offer an online find a therapist tool.

The British Association for Music Therapy (BAMT) is the professional body for music therapy in the UK. They offer an online find a therapist tool.

The Complementary and Natural Healthcare Council (CNHC) provides a UK register of complementary health practitioners. They offer an online find a therapist tool.

The Council for Soft Tissue Therapies is a forum for professional associations who represent massage and soft tissue therapies. They offer an online find a therapist tool.

The Hypnotherapy Directory is a nationwide database of qualified hypnotherapists. They offer an online find a therapist tool.

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Fertility and pregnancy

The Human Fertilisation and Embryology Authority (HFEA) is a government agency that regulates UK fertility clinics and fertility research. On their website, you can read more about fertility treatments, find guidance on choosing a clinic, and search availability using their online database. You can also read about others’ experiences of fertility treatment.

Home Start supports families with day-to-day life. They offer home visits from volunteers who can give practical and emotional support. They also help you to access other local support services.

Mummy’s Star provides information and support to women who are affected by cancer during pregnancy and beyond.

Pregnancy Choices provides free and confidential counselling for people before and after an abortion, miscarriage or stillbirth.

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