Questions to ask your medical team about a clinical trial

You should have plenty of time to ask questions about a trial. Write your questions down beforehand. You might find it helpful to take someone with you to the appointments. They might be more able to remember what you are told because they will be less anxious, or they could note the answers you get. You should feel free to ask about anything that is on your mind. There is no such thing as a silly question.

It might help to ask some of these questions:

  • How will this trial help people?
  • What will the trial involve?
  • How can it benefit me? Will it benefit me?
  • What is known about the trial treatment?
  • What are the risks?
  • How do you know the trial is safe?
  • Will I be able to choose the treatment if I am in the trial?
  • Will the trial take longer compared with standard treatment?
  • Where will I have treatment?
  • Will I have to stay in hospital?
  • How often will I have treatment?
  • Will I have more tests than I would in routine care? What are the risks associated with having these extra tests?
  • Will I have to fill in questionnaires about how I am feeling? How many? How often?
  • How will the trial affect my day-to-day life?
  • How many extra hospital visits will be involved?
  • Will I be reimbursed for extra travel costs?
  • Who will be in charge of my care?
  • How long will the follow-up be?
  • What will happen if my lymphoma gets worse while I am in the trial?
  • What will happen if I change my mind?
  • What treatment can I have if I withdraw from the trial?
  • Is there anything I can or can’t do while I am taking part in the trial?
  • Can I take my usual medications?
  • When will the trial results be published?
  • How can I find out the trial results?

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