News

Read the latest news and views from Lymphoma Action. 

Use the drop down filter to find the most relevant news for you.

Santa run 2021 poster

Our Santa Run is back!

Join in the festive fun and show your support for people affected by lymphoma!

24 November 2021
Practise self care for life graphic

Self Care Week, 15-21 November 2021

As this week marks Self Care Week, here’s a reminder of some of the information and support we offer to help you live well.

15 November 2021
European Medicines Agency logo

New treatment approval for WM

The European Medicines Agency has approved zanubrutinib for Waldenström’s macroglobulinaemia (WM). 

4 November 2021
COVID vaccination

Don't forget your flu jab

You are recommended to have an annual influenza or 'flu jab' if you have lymphoma. Find out more.

20 October 2021
An appeal to the public

An appeal to the public

As COVID-19 restrictions lift in England, we have joined 40 other cancer charities in an open letter to the public to raise awareness about the impact of ‘freedom day’ on people affected by cancer, and the steps people can take to protect those who are still clinically extremely vulnerable to COVID-19.

16 July 2021
Working in hospitality

Returning to the workplace?

As restrictions are lifted and guidance on working from home will end, we consider what rights people with lymphoma have, the latest government guidance for England and include some questions you might ask your employer as you consider returning to work. 

13 July 2021
Text that says Results

Highlights from BSH

This year, the British Society for Haematology held their annual scientific meeting online. Clinical experts presented some of the latest developments across all areas of lymphoma research.

5 July 2021
COVID-19 vaccines

Booster COVID-19 vaccinations

Phase 3 of the COVID-19 vaccination programme will begin in the autumn with booster jabs for the most vulnerable people.

1 July 2021
Spiky blue sphere representing a virus, surrounded by yellow Y-shaped antibodies

Antibody tests after COVID vaccination

In most places, antibody tests to check your response to COVID vaccination are not routinely available on the NHS. Here, we list a few things to consider before deciding whether or not to pay for a private test.

23 June 2021
Back view of a man and a woman walking a dog. They are standing apart from each other. There are trees in the background.

Keeping yourself as safe as you can

Whether or not you choose to go out more, and how many people you choose to meet within the current rules, is a personal decision. To help you decide what you feel comfortable doing, we recap some of the main considerations and suggest things you can do to keep yourself safer.

15 June 2021
35-year anniversary

It’s our 35 year anniversary!

On Saturday 12 June, we will be celebrating 35 years of supporting people affected by lymphoma. Our Chief Executive, Ropinder Gill, has recorded a special message to mark the occasion, and to thank all of our wonderful supporters.

11 June 2021
SMC logo

Scotland approves two new treatments for use on the NHS

Mogamulizumab has been approved for people with rare types of relapsed or refractory skin lymphoma, and acalabrutinib has been approved as a first-line treatment for some people with chronic lymphocytic leukaemia (CLL).

7 June 2021
Family and friends

Carers Week, 7-13 June 2021

This week is Carers week, an annual campaign to raise awareness of caring and to recognise the contribution of carers across the UK. At Lymphoma Action, we have a host of resources available to support people who may be caring for someone affected by lymphoma.  

6 June 2021
Anna and family

Celebrating 35 years of making a difference

We were delighted to have the opportunity to talk with Anna, whose parents, Tim and Felicity Hilder were instrumental in starting the charity over 35 years ago. Here, she explains why Lymphoma Action is still close to her heart as we celebrate 35 years of supporting people affected by lymphoma.

27 May 2021
Sunhat, sunglasses and sunscreen

Sun safety tips

Sun safety is important as some treatments for lymphoma can make skin more sensitive to sunlight.

4 May 2021
Hands up

Could you help shape new research into follicular lymphoma?

Lymphoma researchers at the NCRI would like to hear from you if you are a patient, carer or family member of someone diagnosed with follicular lymphoma at any stage, from active monitoring (watch and wait) to active treatment or follow-up. 

16 April 2021
A group of diverse people advertising our survey

Don't let your voice go unheard

Thank you to everyone who took part in our short survey to improve the lives of people affected by lymphoma. This survey is now closed.

25 March 2021
CNS lymphoma image

Hopeful results for secondary CNS lymphoma

MATRix-RICE chemotherapy followed by a stem cell transplant shows favourable outcomes in people with lymphoma that has spread to the brain or spinal cord.

1 February 2021
Debbie

I am vaccinated!

Debbie shares her experience of having her COVID-19 vaccination.

28 January 2021
Scottish Medicines Consortium logo

Brentuximab vedotin

Brentuximab vedotin is to be available on the NHS in Scotland for first-line treatment of systemic anaplastic large cell lymphoma.

18 January 2021
ESMO logo

New guidelines on follicular lymphoma

New European guidelines give evidence-based recommendations for the diagnosis, treatment and follow-up of people with follicular lymphoma.

6 January 2021
COVID-19

UK National lockdown - COVID-19 update

People who are clinically extremely vulnerable - including people with lymphoma - are advised to take extra precautions to protect themselves.  

5 January 2021
COVID-19

COVID-19 and lymphoma, including vaccine information

Latest information about COVID-19 and how it affects people with lymphoma. This information comes from authoritative sources, including the UK government, NICE and the NHS, and is frequently updated to reflect the latest guidance. 

31 December 2020
Flu jab

COVID-19 vaccines Q&As from the DHSC

The Department of Health and Social Care (DHSC) explain the different vaccines and answer commonly asked questions about the COVID-19 vaccine. 

14 December 2020
Flu vaccine

COVID-19 vaccine information for people affected by lymphoma

The UK’s COVID-19 vaccination programme has now started following the UK approval of the first COVID-19 vaccine on the 2 December. The government recommends that people who are at higher risks of becoming seriously ill due to COVID-19 should have the vaccine when it is offered to them, which includes people affected by lymphoma.

10 December 2020
Marie

Thank you to our Virtual Santa Runners!

We are delighted with the success of our first ever Virtual Santa Run, and want to say a big thank you to everyone who took part in support of our work.

9 December 2020
Vitamin D

Vitamin D supplements recommended

People are recommended to take vitamin D supplements during autumn and winter. In England clinically extremely vulnerable people can register for a free 4-month supply.  

3 December 2020
ESMO logo

New guidelines on CLL

New European guidelines give evidence-based recommendations for the diagnosis, treatment and follow-up of people with CLL.

4 November 2020
Feel scrabble letters

How are you feeling?

Never before has looking after our mental wellbeing been more important. This video from one of our live webinars focuses on coping strategies for looking after your mental health and wellbeing.

22 October 2020
SMC logo

New treatment options for lymphoma in Scotland

Lenalidomide plus rituximab is now available on the NHS in Scotland for relapsed or refractory follicular lymphoma, while ibrutinib has been approved for NHS use in people with relapsed or refractory Waldenström’s macroglobulinaemia.

20 October 2020
Graphic showing the 5 symptoms of lymphoma

Help the NHS help you

If you have a health concern please don’t put it off - contact your GP.

19 October 2020
Words of support

Your words of support

Thank you to everyone who shared their personal messages of support for someone who has just received a lymphoma diagnosis. 

1 October 2020
Flu jab

Ask the expert: Should I have a flu jab?

You are recommended to have an annual flu jab if you have lymphoma, if you are having chemotherapy, steroids or radiotherapy or if you have had your spleen removed. 

21 September 2020
Bridges of Britain logo

A story from Bridges of Britain 2020

Our wonderful supporters Deborah, Ruth, Kathryn and Rebecca share why they are taking part in the challenge by walking through York this September. 

16 September 2020
World of thanks listing

A World of Thanks

Today is World Lymphoma Awareness Day, and an opportunity for us to say thank you to everyone who has supported our work.

15 September 2020
NICE logo

NICE approves new treatment for DLBCL

The National Institutes for Health and Care Excellence (NICE) has approved polatuzumab vedotin for use on the NHS in people with diffuse large B-cell lymphoma (DLBCL).

20 August 2020
Distance Aware badge 2

UK Government backs Distance Aware campaign

Following on from the launch of our free Distance Aware badge as part of an initiative with NHS Wales, the Department of Health and Social Care and the UK Government have now confirmed their endorsement of the #DistanceAware campaign.

5 August 2020

Distance Aware badges - now available to order

As part of an initiative with NHS Wales, we have produced a Distance Aware badge to support people who may have concerns around staying safe when outside their homes as UK lockdown and shielding restrictions continue to ease.

30 July 2020
thank you appeal

Thank you - Emergency Appeal 2020

We are so grateful to everyone who has already donated to our 2020 Emergency Appeal.

Our team have recorded a special thank you for this vital support at such a challenging time.

22 July 2020
Returning to work

Returning to work?

Possible questions to ask if you are returning to work after shielding. 

9 July 2020
NICE logo

Brentuximab vedotin

Brentuximab vedotin is to be available on the NHS for first-line treatment of anaplastic large cell lymphoma.

9 July 2020
ASCO logo

Highlights from ASCO

The American Society of Clinical Oncology (ASCO) held a virtual conference at the end of May.

25 June 2020

Tips on using face masks

Now that face coverings are compulsory in some settings in England, this video gives you tips on using face masks.

15 June 2020
Appeal 2020

We need your help

Help us safeguard our front-line services by donating to our emergency appeal.

8 June 2020
Ropinder Gill - CEO

A message from our Chief Executive

Ropinder Gill, Chief Executive at Lymphoma Action, has recorded an update for our supporters on our work, our response to COVID-19 and what you can expect from Lymphoma Action now and in the future.

21 May 2020
Sunhat, sunglasses and sunscreen

Sun safety

Some treatments for lymphoma can make your skin more sensitive to sunlight (photosensitive). This includes radiotherapy and some chemotherapy drugs, including dacarbazine, methotrexate and vinblastine.

4 May 2020
Graphic showing the 5 symptoms of lymphoma

Help the NHS help you

 If you have a health concern please don’t put it off - contact your GP.

1 May 2020
European Medicines Agency logo

Brentuximab vedotin

The European Medicines Agency has approved brentuximab vedotin for first-line treatment of anaplastic large cell lymphoma.

22 April 2020
We are still here for you

We are still here for you

The last couple of weeks have been a challenging time for everyone. At Lymphoma Action, our mission still remains the same – to make sure no one faces lymphoma alone.

8 April 2020
COVID-19 green image

Latest government update

Specific information on shielding and protecting people considered extremely vulnerable from COVID-19. Those with lymphoma have been identified as one of the extremely vulnerable groups.   

23 March 2020
HORIZONS study

HORIZONS study completes recruitment

Over 3,000 people have entered the HORIZONS study into the impact of cancer diagnosis and treatment on everyday life, including 719 people with lymphoma.

29 November 2019
Carly, our Volunteering Development Manager

Behind the scenes with... Carly

On International Volunteer Managers Day, our Volunteering Development Manager, Carly, gives an insight into her role at Lymphoma Action. 

4 November 2019
Carol Jarvis in front of BBC Broadcast House

We're on BBC Radio 4!

We're proud to share that we are featured on the BBC Radio 4 Appeal this week.

3 November 2019
Lymphoma TrialsLink Making it easier to find a clinical trial

Happy birthday TrialsLink!

Our clinical trials information service turns 3 this week - and what a busy 3 years it has been!

26 September 2019
WLAD 2019 banner

10 facts about lymphoma on World Lymphoma Awareness Day

World Lymphoma Awareness Day takes place on 15 September every year to raise awareness of lymphoma - the most common blood cancer. 

This year the campaign is encouraging people around the globe to share key facts about lymphoma - not only so more people are aware of the disease, but because research shows that people affected feel more confident when they are more informed.

15 September 2019
Teeside and Leeds support groups

Summer catch up

Attendees of the Teeside and Leeds Support Groups have great get-together 

21 August 2019
Diagram showing a T cell with a chimeric antigen receptor, with the activation signal meeting the stimulation signal attached to the antigen receptor

Improving access to CAR T-cell therapy

Lymphoma Action is continually pushing for improvements in the access to, and delivery of, CAR T-cell therapy to allow everybody who is suitable for treatment to access it.

12 August 2019
All Lymphoma Action booklet covers

Health Information Week 2019

We're supporting Health Information Week as we believe high quality health information empowers people affected by lymphoma.

1 July 2019
Mark with his wife Paula_Bridges Walk

Raising awareness - Mark's story

How one of our volunteers shared his story with his hospital radio and local newspaper to help raise awareness of lymphoma and the support we provide. 

27 June 2019
CAR T-cells

Behind the headline: Has CAR T-cell therapy got 'cancer on the run'?

It is true that CAR T-cells are a new type of treatment that could transform the prognosis for some people with difficult-to-treat lymphoma. However, it can have serious side effects and research is still ongoing to find out the long-term effects of the treatment.

21 June 2019
Volunteers' Week 2019_Thank you

Happy Volunteers’ Week 2019!

Volunteers' Week is a national campaign celebrating the wonderful contribution of volunteers across the UK. We'd like to say a huge thank you to our incredible volunteers - we simply couldn’t inform, support and connect with as many people affected by lymphoma without your time, energy and commitment.

31 May 2019
Sun awareness week

Sun Awareness Week 2019

Sun safety is important throughout the year, even if the sun isn’t shining - you can still get burnt through clouds.

8 May 2019
Mary

Catch up with Mary

Read Mary's experience of chemo brain in the forthcoming Lymphoma Matters magazine

14 February 2019
Helpline

We support Time to Talk Day

The campaign encourages conversations about mental heath, urging people to talk to others in whatever way they want to.

7 February 2019
World Cancer Day orange logo

World Cancer Day 2019

I Am and I Will - you are the hero of this campaign. Start a conversation about cancer today with your family, friends, colleagues and networks.

4 February 2019
Lymphoma Coalition Europe logo

Join the new Lymphoma Community Advisory Board (CAB)

The Lymphoma Coalition Europe (LCE) is looking for people to be members of a new Lymphoma CAB - if you want to influence research and help create a louder voice for the lymphoma community register your interest today.

15 January 2019

Jane Slowey memorial membership programme

As part of our commitment to delivering the best possible services for people living with lymphoma, we're delighted that Lymphoma Action will be represented on a new leadership programme for women working in the charity sector.

10 January 2019
NHS logo on blue background

Our response to the NHS Long Term Plan

The NHS Long Term Plan has been published and whilst lymphoma is not specifically mentioned, we're glad to see the more personalised, co-ordinated approach to cancer care. We hope the government supports the commitments with the resources and staffing needed.

9 January 2019
Charity Film Awards logo

Vote for us in the Charity Film Awards!

We're delighted that our animation explaining lymphoma to children has been shortlisted in the Charity Film Awards - we'd be grateful for your voters so we can progress to the next stage.

23 November 2018
Nobel prize

Nobel Prize for Medicine

Scientists whose work underpins a targeted treatment for lymphoma win Nobel Prize for Medicine.

1 October 2018
Talking to a nurse

Pembrolizumab for classical Hodgkin lymphoma

NICE/NHS England recommend pembrolizumab for people with relapsed or refractory Hodgkin lymphoma who have had brentuximab vedotin and cannot have an autologous stem cell transplant

2 August 2018
Two people talking about the new CLL guidelines

New CLL guidelines published

The British Society of Haematology have published their guidelines on the treatment of chronic lymphocytic leukaemia

24 July 2018
NHS 70th birthday image

Happy birthday NHS!

As we celebrate 70 years of the NHS, we say thank you to all the staff who care for people affected by lymphoma. 

5 July 2018
Blood vials

Ask the expert: Blood tests

How good are blood tests at detecting whether lymphoma is progressing or relapsing? We share the answer from issue 103 of Lymphoma Matters magazine. 

27 June 2018
EHA Conference

Biosimilars in the real world

Stephen Scowcroft reports back from a biosimilars panel at the European Haematology Association (EHA) Congress 2018. 

25 June 2018
Image of London skyline

Maintenance for follicular lymphoma

Becky, our senior medical writer, looks at some of the questions raised about maintenance for follicular lymphoma at the post-ASH meeting. 

15 March 2018