Things to consider before taking part in a clinical trial

Taking part in a clinical trial is an opportunity to be a part of an important process. You will be taking part in something that many people are investing in. The outcome of your involvement could have real impact on people who have lymphoma in the future. It isn’t a decision to be taken lightly. You should carefully consider what you have been told.

You might want to ask yourself some of the following questions to help you make a decision:

  • Do you understand what is involved in taking part in the trial?
  • Do you understand the risks?
  • Do you understand that you may not benefit from the trial?
  • Have you had an opportunity to ask questions?
  • Have your questions been answered well enough?
  • Do you feel comfortable with the people who will be treating you? Do you feel you will be able to ask them questions?
  • If the trial is randomised, are you happy with it?
  • If the trial is blinded, do you understand that you will not know what treatment you are receiving?
  • Are you aware of the implications for further treatment if you decide to withdraw?
  • Are there any practical implications to take into account, such as travel and an increased number of visits to hospital? How will you manage them?
     

Further reading

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Personal stories

Read the personal stories of other people affected by lymphoma, including people who have taken part in a clinical trial.

Hear from a clinical trials team

Watch videos of the clinical trials team at University College London Hospital (UCLH) explaining what clinical trials are and what they involve for the people who take part.