NHL in young adults: a population study of people aged 15–29 with non-Hodgkin lymphoma

There is no treatment in this study, and you won't need to have any extra tests. The researchers need information about as many young people diagnosed with non-Hodgkin lymphoma as possible so they can find out more about it. 

Purpose of study

The aim of the study is to find out more about non-Hodgkin lymphoma (NHL) in older teenagers and young adults. The researchers want to find out:

  • the number of young people diagnosed with NHL
  • the types of NHL they are diagnosed with
  • the treatment they are given
  • the response and outcome of that treatment.

By recording this information on large numbers of patients, the study will gather vital information to help improve treatments and cure rates in the future.

The researchers will record routinely collected clinical information on every young adult diagnosed with NHL in England, Wales or Scotland over a period of 3 years.

The researchers are also asking participants if their original biopsy tissue can be used for research to better understand the biology of NHL in young people. This does not require any additional biopsies.

What is involved

This study does not influence your treatment in any way. It records the treatments you have been given, as decided by your doctor.

If you are in a treatment trial, you can still join this study – the researchers can record the treatment you may receive.

If you agree to join this study, your medical team send details of your diagnosis, the stage of your lymphoma, your treatment and how you respond to treatment to the researchers, who are based at Guy’s & St Thomas’ Hospital in London.

All your personal and clinical information is sent over a secure NHS email network, and kept securely in the study office.

f you were diagnosed with NHL any time after January 1st 2015, and you were aged 15 to 29 years (inclusive) at the time of diagnosis, you can contribute your clinical information to the study.

If you have only just learned about this study, but were first diagnosed with NHL after January 1st 2015, you can still join the study. Your medical team can send the researchers information from your records.

If you decide not to join the study, or you wish to withdraw from the study, your information will not be used for this research.

Who can enter

To join the study, you need to have read and understood the study’s patient information leaflet. You do not have to sign a consent form, but you do have to tell your clinical team you would like to join the study.

You may be able to enter if:

  • You have been diagnosed with any type of non-Hodgkin lymphoma between 1st January 2015 and December 2018.
  • You are being treated in England, Wales or Scotland.
  • You were between 15 and 29 years old when you were diagnosed.

You will not be able to enter if:

  • You do not agree to your medical and treatment information being passed to the study team.

Further information

If you are interested in finding out more about this study, please talk to your medical team, or contact the Research Coordinator by email.