Hodgkin lymphoma survivorship questionnaire: a study to find out the long-term side effects of treatment for Hodgkin lymphoma in young women

There are no treatments in this study. Researchers need young women who had classical Hodgkin lymphoma to complete a questionnaire for research.

Purpose of study

The aim of this study is to find out more about how treatment for classical Hodgkin lymphoma affects the long-term health of young women. Young women are particularly at risk of complications of treatment such as early menopause and breast cancer.


You can only take part if you completed your treatment at least 2 years ago.

You will be invited to take part by the clinician in charge of your care.

If you agree to take part, you will be asked to complete a one-off questionnaire about your health since your last treatment for Hodgkin lymphoma. The questionnaire include questions about long-term side effects of treatments for Hodgkin lymphoma.

The researchers may also collect information from your medical records, for example, details about your treatment. All information collected about you for this study is confidential. The study team can give you more details about how your information is stored, used and protected.

Who can enter

Your consultant can give you advice on whether this study might be suitable for you.

The researchers need as many women treated for Hodgkin lymphoma before the age of 45 as possible to take part.

You may be able to enter if

  • You are female.
  • You were treated for classical Hodgkin lymphoma before the age of 45.
  • Your last treatment for classical Hodgkin lymphoma was in 2015 or before.
  • You are 16 or over.
  • You live in the UK.

Further information

More information about this trial is available by emailing the Study Coordinator, Dr Aislinn Macklin-Doherty, at a.macklin-doherty@nhs.net.