Our approach to health information

At Lymphoma Action, we’re committed to providing high quality information for people affected by lymphoma, their families and friends, and the healthcare professionals that support them.

Our information is evidence-based, approved by experts and reviewed by users.

Our information is evidence-basedapproved by experts and reviewed by users. By keeping up-to-date with latest developments, we ensure that our information stays relevant and reflects current practice.

Evidence-based

Our experienced medical writers produce our information using credible, evidence-based sources. You can see these by looking at the reference list on each webpage or by requesting them from our Publications Team

In line with good practice, we make it clear if evidence is lacking, mixed or inconclusive for a particular treatment, intervention or approach.

We keep our information up-to-date by reviewing it at least every 3 years. We also make updates if things change or move forwards before a planned review. On each booklet, webpage and information sheet, you can see when it was last reviewed and when the next update is due.

From time to time, we receive funding for our lymphoma information from pharmaceutical companies. This does not affect the balanced, impartial nature of our information. In accordance with how we work with healthcare and pharmaceutical companies, sponsors have no involvement in the content and have no editorial input. Their name/s are clearly stated on the relevant information.

Approved by experts

In producing our health information, our writers work with medical professionals who have current knowledge, experience and expertise in the relevant field. If there is a difference of professional opinion between experts, we work with them to see if they can reach an agreement. If this isn’t possible, we make clear in our information that such a difference of opinion exists. You can see which experts have worked with our writers in the acknowledgements section of each booklet, webpage or information sheet.

Our Lymphoma TrialsLink database, which is updated at least once a month, summarises current clinical trials. Each entry is verified by a professional working on that specific trial. 

Reviewed by users

We are led by people affected by lymphoma. This means that we’re guided in producing our information by what people affected by lymphoma and those close to them tell us. 

This includes:

  • Our Reader Panel, made up of volunteers with personal experience of lymphoma, including family members and friends of people who have had a lymphoma diagnosis. Some people on the panel don’t have any previous knowledge of lymphoma; their insights are valuable in helping us to create information for those who are newly diagnosed.
  • People who respond to our social media callouts, via our own channels and those of other organisations.
  • Health and social care professionals, for example, the lymphoma nurse specialists we’re in contact with across the UK.

We also review trends in contact with our Information and Support Team, who run our helpline services.

All of these people guide us so that we can address the common concerns people living with lymphoma have. We create our information together with them: they suggest key questions to cover, comment on drafts and give their views on the content, structure and format of each booklet, webpage and information sheet. They also tell us how clear and easy it is to understand. Our writers are informed by this feedback in preparing the final version.

The Information Standard

You might notice the Information Standard quality mark on some of our information. This standard was supported by NHS England to help members of the public recognise health and social care information as being credible and trustworthy. As of August 2019, the Information Standard no longer exists, although we continue to work according to its good practice principles. The logo appears on our information produced before August 2019.

Questions or comments

If you have any questions about our information, or you’d like to give feedback, please get in touch at publications@lymphoma-action.org.uk or call 01296 619409. You can also tell us what you think about individual webpages by using the feedback button on the left hand side.

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