Lymphoma Action Support Groups offer a safe and confidential space where people affected by lymphoma can share experiences, ask questions and help each other through the day-to-day issues of living with and beyond lymphoma. We have support groups across the UK.
Maureen, Support Group Organiser
I had never heard of lymphoma before I was diagnosed in September 2013, therefore when I saw a poster advertising the Peterborough Lymphoma Support Group I decided to go along. I needed to talk to like-minded people to help me understand about lymphoma and it was great to meet a very friendly group of people who made me feel warmly welcomed.
When the previous volunteer stepped down in 2016, I decided to start volunteering with Lymphoma Action as the Support Group Organiser to help the group continue. It has helped me in many ways as I’ve been able to give something back to the support group and help lots of people in such a fulfilling and rewarding volunteer role. The group is very fortunate to have the wonderful support of Haematology Nurse, Caroline.
Over the past 3 years I have organised various fundraising and awareness activities and I'm so proud and grateful to the support group attendees in aiding us to have raised over £5,400 for Lymphoma Action.
As someone who is very good at listening, one of my highlights as a volunteer is knowing I’ve helped attendees cope with having lymphoma, living alongside it and the after effects of having treatment, and on family and friends. The feeling of satisfaction I get is so uplifting and gratifying.
Caroline, Haematology Nurse in Peterborough
'I see the support group as being an invaluable resource for people affected by lymphoma. Some people wish to have regular contact with others, some dip in and out when they feel they need to, or when there is something on that they particularly want to be involved with.'
'I found out about the support group while I was having chemotherapy and I thought it would be worth coming along to meet others and understand more about lymphoma. After all my experiences and support, I now feel ready to give something back by helping others.'
'I benefit greatly from talking with people who attend the group as they are so supportive, caring and have been such a help to me through my lymphoma journey. Maureen organises an interesting programme of events and is so welcoming to everyone.'
'When my lymphoma worsened, I turned to the group. I was scared and felt isolated, but found going to the group so helpful and was given a warm welcome. It's a wonderful lifeline.'
'It is good to meet up with people who are in the same position, as they understand what you have been through and it is good to welcome new people. I also enjoy the fundraising, such as the tombola, which is a good way of making money for the support group.'
'Initially I joined the support group as I felt quite alone but since attending I feel a lot better and confident in myself. I feel able to contribute and help new attendees see there is light at the end of the tunnel.'
'I joined for support and I wanted to give back the help it has given me.'
'I joined the group hoping that meeting other people with my illness would help me in my recover. It certainly has done that, for which I am very grateful. I look forward to the presentations by speakers and feel that my recovery is complete.'
'I was looking for some support when I was first diagnosed and it was reassuring to talk to other people who had lymphoma, many of whom had lived with it and survived for many years.'
'I feel that I get a chance at the meetings to pass on my experiences, especially to those newly diagnosed, and to learn from others. I believe the group is a worthwhile vehicle for information to be spread about lymphoma and to try and get a message out to the general public.'
'I still worry about my cancer at times...there is always someone to talk to and share experiences with at the support group.'
'In the early days following my treatment the group really helped me as I had very little support around me. I wanted information on how lymphoma affected others and how they managed their emotions, which I certainly received from the group. For me, the most enjoyable meetings are when we have a speaker who can broaden my knowledge.'
The Peterborough Support Group meet on the second Friday of each month from 1.30-3.30pm at the Robert Horrell Macmillan Centre, Peterborough City Hospital.
This story was featured in Issue 114 of our magazine Lymphoma Matters.