Could you help shape new research into follicular lymphoma?

Lymphoma researchers at the NCRI would like to hear from you if you are a patient, carer or family member of someone diagnosed with follicular lymphoma at any stage, from active monitoring (watch and wait) to active treatment or follow-up. 

Hands up

Lymphoma researchers at the National Cancer Research Institute (NCRI) would like to work with ‘experts by experience’ to develop a new NCRI clinical trial investigating new treatments for people with relapsed follicular lymphoma.  

The proposed clinical trial will evaluate several new, non-chemotherapy treatments for relapsed follicular lymphoma alongside standard therapies. This research will compare new and standard treatments to identify the most promising new treatments for development. They are seeking your views and help in designing this important trial to ensure it meets the needs and priorities of people with follicular lymphoma, their families and carers.

As an ‘expert by experience’ the NCRI are interested in your views and advice on the research plan and proposed outcomes.

What will I be asked to do? 
  • Before the event, which is planned for this May, you will be sent through details of the study and its aims.
  • You will be provided with virtual meeting sign-in details for a video conference.
  • On the day you will join a meeting with other ‘lived experienced’ people and the researchers from the study team. The researchers will explain their specific questions and methods and ask for your opinion/feedback. This may be an area of the research idea or methods to be used. 
  • You will be provided with advice and support from the study team and the work can be carried out from home.
What is the National Cancer Research Institute (NCRI)?

The National Cancer Research Institute is a UK-wide organisation working in partnership with cancer research funders to develop new treatments for cancer patients in areas of greatest unmet need. The trial was developed in collaboration with the NCRI Low Grade Lymphoma Subgroup by Dr Kim Linton, clinical senior lecturer at The Manchester Cancer Research Centre and Chair of the Subgroup, and Dr Mark Bishton, honorary clinical associate professor at the University of Nottingham. 

How to get involved

If you would like to get involved, please contact Dr Tania Seale by email –

16 April 2021