Our advocacy work
We are committed to improving diagnosis, treatment and care for everyone affected by lymphoma.
Our advocacy work is grounded in what our community of people affected by lymphoma tell us matters most. Although advances in the treatment of lymphoma are being made, there are still key challenges to address. Together with our community, we are committed to working with the Government and all decision-makers to make change happen.
Advocacy and policy priorities
We have set out four clear policy priorities that will drive our public affairs and advocacy work over the next three years and beyond:
- We will work to improve diagnosis and reduce emergency presentations
- We will advocate for better treatment and care
- We will empower our community to be partners in their own care
- We will ask decision makers to focus on long-term quality of life
Our role is to represent our lymphoma community to the best of our abilities so that no opportunity is missed and so that every donation that we receive from our community is translated into better outcomes for everyone affected by lymphoma.
Read our full policy priorities document
2026 highlights
- We welcome the ambitious and promising National Cancer Plan and will be working to make sure that the unique needs of the lymphoma community are fully reflected as the plan is put into action.
- We are working with the NHS England Cancer Programme, in partnership with Leukaemia UK and Myeloma UK, on the development of a Best Practice Timed Pathway (BPTP) for blood cancers including lymphoma. These pathways are designed to achieve faster diagnosis, more coordinated treatment and care, and better support throughout.
- We continue to support the National Cancer Audit Collaborating Centre’s new National Non-Hodgkin Lymphoma Audit (NNHLA), which aims to identify variations in cancer services across England and Wales, ultimately hoping to reduce inequalities.
- We are working with the SEARCH study team to make sure that the patient experience influences the design and delivery of the research. SEARCH is a national research project that will test a new way of identifying people with lived experience of Hodgkin lymphoma who might benefit from lung cancer screening earlier than current guidelines allow.
You can keep updated with policy news and campaigns here
